Has anyone ever just quit taking meds daily?  I feel so lousy on my meds and continue to have anaphylaxis even while on all these meds so why even bother taking them?  Sometimes I think the meds just make me feel worse and I will continue to have anaphylaxis with or without the meds.  Pretty sure I'm willing to see what happens if I stop, but wondering if any of you ever have done this before.

I understand how you feel, but I'd urge you not to go off them yet.  As I remember, I thought you might not be on enough medicine to control mast cell symptoms.  Didn't you just see the Boston docs and get some new meds to try or a new regimen of the same meds?  Aren't they still testing you for some things, too?  Patience is difficult when it doesn't seem like things are working, but being under-medicated might be causing your problems.

Cold turkey is not a good idea with mast cell stabilizing and antihistamine meds.  I can't remember what you're taking, but I think it was a long list!  First of all, talk with your doctor about your feeling that some of the meds might be making you feel worse.  See if an increase is needed or an adjustment or additional dose(s).

Ana gave you good advice about only changing one med at a time.  It can be so confusing otherwise as well as counter-productive.  If the doc doesn't want you to go off anything, maybe you could add an alternative to one medicine as you reduce another one.

Try to hang in there at least until your testing is complete and Dr. Akin gives you the final word about what's going on.  If you can't get any help from your local doc, don't be shy about calling Dr. Akin's office and telling them how you're still feeling bad and see what they'll recommend.  Sorry in advance f I'm not remembering your situation correctly....