BrynnKaitlin
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Posts: 10
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Hello, everyone!! My name is Brynn, and I have been sick for seven years now. My symptoms started at the age of eleven (I turned eighteen a few days ago) and we are finally starting to figure out why I've been sick for so long. Long story short, after six years of suffering (I was diagnosed with IBS at age of 12), I was diagnosed with severe food allergies (at age 17). My allergies include dairy, garlic , nuts, eggs, onion, most vegetables, most fruits, corn, soy, legumes, rice, and many more. My diet consists of mostly chicken and beef. If I'm not extremely careful, I will go into Anaphylaxis. This has happened five or six times total.
Anyway, I've been on homebound from school for the past two years of high school because I've been so sick. When I'm sick, I can't function at all. We've figured out that I've had all the symptoms of a Masto problem all along. We believe that I may have MCAD, but possibly Systemic Masto. My symptoms include: Gastro problems, severe (but unexplained) bone pain, Anaphylaxis, extreme sensitivity to smells (a friend's perfume sent me into Anaphylaxis), food allergies, terrible headaches, drug intollerances (Antibiotics make me EXTREMELY SICK, and They will keep me down for months. I have to get Rocefin injections, because any antibiotic that goes through my GI tract makes me so sick that I want to die.), strange skin rashes and bumps/blisters, heart palpitations that last forever, severe asthma, fatigue, and several other symptoms.
I am seeing Dr. Afrin in February. I already had my blood drawn and did the 24 hr urine for the tests that he ordered. We are hoping that he will be able to give me some relief. I went through four bottles of Benadryl for just the month of December alone. I have been taking Allegra and Tagamet every day, and it has made a HUGE difference. I also take Singulair and use a steroid inhaler (Alvesco) daily for my Asthma.
I was put on Prednisone four or five times last year, and every time that I was on the steroids we noticed that I impoved significantly.
Hopefully I will be diagnosed soon, and we can get my quality of life back up to what it used to be. It's difficult to be a teenager and not be able to go out with your friends because something as simple as a smell can send you into shock. I'm lucky though, because even though I'm sick, I have some of the greatest friends that I could ask for, and the most supporting family in the world.
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