I have had about 7 doctors look at my upper mouth and lower septum, and no one seems to know what this symtom is. I asked a dentist, a ear/nose/thoat dr, a family doctor, my hemotologist/oncologist, and a few others whose specialty I do not know. (One Dr accused me of putting drugs up my nose.
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The entire area around my upper mouth, sinus and teeth feel cold all the time like I bit into ice cream. It is very uncomfortable. When it gets really bad, the top of my mouth gets red spots, my nose bleeds like crazy, and my upper mouth gets completely torn up when I eat food that is not soft. It is such a strange feeling that I have dreams that my teeth are falling out.
After reading through a lot of posts here, I read more than once that vibrations can cause mast cell activation. Could this be caused by my electric tooth brush?
If it is mast cell activation in this area, does that mean that I might have systemic mastocytosis and not just cutaneous? I seem to have more symtpoms than cutaneous masto, but I am luckier than many with systemic masto.
If it is attacking this area, how can they test for it? I asked an ENT if he could do a biop, and he said a biop of the sinus is not a good idea because there are so many delicate blood vessals.
Any thoughts?