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Hi my name is Vicky i have been diagnosed with indolent systemic mastocytosis a month ago. Unlike many others my spots began 6 years ago and i ignored it. about a year ago I had my first child and thats when all my syptoms began it started with sever allergies and ithought it was because of the time of year it was march and since i had a c section i thought my immune system was low tring to catch back up after the baby. At this time i was taking zertex it helped some. Later on maybe 4 months later it wasn't working for me anymore, i finally went to a urgent care and they told me it was rispitory infection gave me some antibiotics and more told me to continue the allergy medicine come back in 2 weeks if it didnt get better. I toook all my medicine and still felt bad so i went back and they told me it was a sinus infection gave me some sudafed and told me if it persist to come back, my syptoms were still there by this time i carried a roll of toliet paper every where, my allergies were severe and i had a new born to take care of. i wait a month before i went to another doctor and just like the first one she said i had rispatory infection gave more medicine and sent me on my way. Well this didnt help either i was fustrated and stoped going to the doctors for a while i began to take perscribed medicine for my newphew to get relief.i kept doing this for aout a year. Around march easter time my allergies flared up really bad and i took allergra d, zertex,and ibpropehn tring everything and anything to get releif nothing worked i began to get cold chills and then all of the sudden felt like i was burning up inside without a fever and on top of that my lymph nodes began to swell int he back of my neck. The very next day I couldnt stay awake I felt so weak my mother in law told my fiance he should take me to the urgent care. so we went and here is where i got my first dose of steriods followed by antibiotics, I got better. Two weeks later i lost my voice and my allergy syptoms came back and another lymph node poped up underneath my chin on my neck, i was freaking out and began to goggle lymph nodes and thought i had cancer, so i called another doctor and made an appointment and gave him the run down of all my syptoms by this time my voice was coming back and i told him about my spots he refered my to my dermatologist and t was here that i had a skin biopsy, a week later it came back as urticaria pigmentosa mastocytosis, my doctor said im going to do some blood work just as a precaution and if my trypase was high i would have to do a bone marrow biopsy, by this time my mind was all over i didnnt know how to feel i remember holding back all feelings tring to remember all the information given to me and about an hour later i called my aunt and broke down like a little baby, about three days later i got a call from my derm and he said that my trypase were high and i had to get a bone marrow biopsy asap so we scheduled it and 2 weeks later i got my results and here we are. Now all im worried about is will it progress to aggresive and how long will it be. My bone marrow results was negative for the mutation kit but it did have the ckit but i dint know what this means. I also want to be able to help as much as i can others.