Hmm I didn't see this, maybe that explains why no-one was talking to me in other forum!  My brief story...

Over 25 years I've been diagnosed with, in order...

- CFS
- Lyme disease, or similar
- Multiple Chemical Sensitivity

All had dominant inflammatory aspects.  In the last few years I've generally become more reactive and a month ago I had a very bad reaction to a vehicle I was driving for a week. It left me with my itch becoming permanent.  Previously it had only occurred if I was exposed to my 'MCS' triggers.

In discussion with a fellow MCS sufferer I mentioned how mast cells always seemed to come up in everything I followed up in terms of my symptoms.  For example, how I was improved by only two things I knew of, massage and hot baths or saunas.  Both these have mast cells in their explanations of effect.  She mentioned that there was such a thing as mast cell disorder .. which led me here.

Since then, I've discovered so many of my inexplicable symptoms are explained, possibly, by some sort of mast cell disorder.  Examples are how a few years ago I noticed that after a hot sunny bushwalk I always got the itch which otherwise I'd have thought would have improved by being away from triggers.  Another was the recurrent facial flushing that was associated with sun and exercise but not related to sunburn.  Tendon pain and sensitivity at times, and vascular pain and strange problems...

So here I am and hoping to find at least symptomatic relief and some better understanding of what is afflicting me.

A bit overwhelmed to see I still have 898 thousand characters before I reach the post limit!  People must write essays.

Hi JR, just wanted to welcome you here and tell you, you have found the right place!! You sound like youre experiencing many mast cell symptoms. There is so much great info here.. ask anything you want.. and know we're here for you! Welcome again!!
Hugs,
Ramona