Hey Missybean ;
Wow. Never thought Id be GLAD to see more people with TMEP !
You know what I mean...You can read my earlier comments that go more in depth to my experiences. I dont itch so much when I get an
"attack", its the weakness and aching that bother me the most. The nausea seems to be getting worse. I was already on Advair n Pro vent n a nebulizer for my asthma. Im also a seasonal allergy sufferer and dust/dust mites are also major triggers. Cleaned out my closet one day & got the worst lesions-welts on my hands that burst open n hurt like heck! I suspect you should avoid melons too (read your other post).  My allergist/immuno says TMEP is one of the rarest forms of Masto-which in itself is rare- Lucky Us  
Anyway, Im just learning too from all this wonderful info on this fantastic site. I am lucky to have such great friends and family; and now I thank God for all the special people here too who are supporting each other through this !

I also have TMEP.  My main symptom is flushing and feeling like a hot water hose is in my chest.  I awaken several times a night with this feeling and sometimes have flushing in the day.  When I am having an attack, I will have a flush that makes my hair and the back of my neck all sweaty.  Also stomach upsets.  I had a BMP and I am systemic.  I take Acephix - expensive, but I have tried all the others and they aren't effective, along with zantac, zyrtec, singular, nambutone for joint and muscle pain and lovastatin for chlosteral.  I will soon be going to physical thereapy for bursitis in my hip.  My spots don't erupt and are not itchy.  I was diagnosed by my dermatologist.  Previous to that my primary care doctor had no clue what was wrong with me.

When I first started feelin really bad- my family dr. ran all kinds of tests, n when she couldnt figure "it" out- brought up Fibromyalgia. I felt that was her only "out"; & I wouldnt accept that diagnosis or the meds that went along with it. At that point, I was already on like 13 meds, including 4000iu.s of fish oil, & 4000iu.s of vitamin D, aspirin,etc.etc. No WAY was I taking another pill ! Well then my "crisis came about with the hives n scabies n the dermatologist. When my fam. dr. got the TMEP report, she called me n said she'd never heard of it before n had to research it. Thank God my allergist is more informed and wants to keep learning more ! Sometimes he gives me too much info n I cant remember it all. Brain Fog = (
I find that spending time outside in the sun helps both my mood and with "hiding" the spots.  Also, you can go online for coupons for some otc antihistamines, inhalers, etc.
I do as much as I can on my good days, cuz ya never know when a bad day is gonna hit. Make sure to rest between catching up. N try to keep a log of what precedes a TMEP attack: foods, cleaners, etc. As this is still fairly new to me, I'm hoping this will help me identify what sets my "spots" off. Most times I can guess-like if I ate spicy food, or pulled weeds without gloves,etc. etc.
The brain fog , and the joint pain are what bug me the most. Ive had hot flashes for 20+ years, so the flushing Im used to, n the upside of stomach upset is that now Im a size 8- thats what I tell myself when I feel like puking all day anyway...
Hopefully there's some info here thats helpful to you fellow TMEPers !

Missybean yes, TMEP, then systemic...however, I had been sickly and knew something was very wrong. For years my family MD would say, something's not right, we just don't know what it is. Therefore, the development of the TMEP "rash" led me to research....and surprise! Personally I think I have had it for years, so can't answer if it got worse.                   Oddly enough, I have chronic constipation. I was taken off gastrocrom, and had horrific stomach pain, so went back on.   Sunny, the hydroxyzine really helps me at night and the gastrocrom helps with the "overheating".

FYI when I said tanning bed...I mean 5-10 mins max. I can't be in the sun for long before I become deathly ill. Sorry, hydroxyzine is Atarax...yes, prescription.

Hey Melissa;
My family doc. had suggested "it" might be Fibromyalgia when she couldnt figure out why I was feeling so crummy all the time. I was never tested for it, cuz all the other stuff happened and I ended up with a skin biopsy from dermatologist confirming TMEP.
You all are so knowledgable- and like I say- sometimes my allergist is a little too cerebral n I cant remember all the info he throws at me. I have some questions that occurred to me; some just curiosity...
It seems that more women than men are affected by Masto ? How do you know if you're Flushing vs. hot flashing ? Does anyone know if Flu shots are safe for us ? And what causes the Irritability & Brain Fog ? Is it mast cells doing that ? Some days I just try to keep my mouth shut cuz nothing comes out right, or else Im a raving witch. And, is Cromalyn the same as Ketotifen ? Okay, thats it for now. Next time I visit my allergist- I will ask him a question & have him wait til I write the answer  
Lori

I take allegra, but not singulair....for some reason don't tolerate it well.