I'm trying to decide if I should go to this meeting.  I'd love to hear who is going.  Maybe we can even share some expenses like cabs from the airport or even a room.  Please contact me to discuss it.

I'd really like to go!  A bit too far from Brazil though!  

Maybe Spain...!



Lisa

I went to the one in NJ a few years back and it was absolutely amazing.  I highly recommend going if you can afford it.

The agenda for the meeting is excellent.  All of the top docs will be there. In addition there is a walkathon to raise money for the newly created Center of Excellence for Mast Cell disorders and Brigham and Women's, chaired by Akin and Castells.  If you cannot attend you can get the info after the conference.  Also,
if you cannot attend, why not organize a walkathon in your home town to raise research money for Mast Cell disorders.

Stacy,

I don't know if you have seen my posts regarding Disney, but it is truly the best and safest vacation that we mast cell people can go on! DO you get a guest assistance pass? If not, make sure you go to Guest Services at any park and explain that you would like to get a guest assistance pass (up to 6 people in your party) because you have a rare disease (tell them which one), which is triggered by many things including heat and fatigue. By getting a pass that allows you the alternate entrance (that is important to make sure the pass says that), you honestly will cut down on your fatigue and you will prevent symptoms from creeping up on you.

We go to Disney nearly every year and I always get this. Disney is all about making sure that everyone, including us sickies, have the time of our lives. They are also great at creating dishes for you to eat in the restaurants once they find out you have "alllergies". (So much easier to tell the restaurant chef allergies rather than attempt to tell the whole dran out story.)

Hope this helps you have a terrific time in Disney!

I am thinking of going to the meeting. But like you, I need help with expenses by sharing room and cabs and such. This is my first time posting and I'm not sure how to let you know I am interested.

I cant go because I am too ill to travel far at this point.. I do want all of you to know though, that if your reason for not going is financial, I know that TMS has some scholarships and will pay for people who cant afford it any other way--they offered it to me, so graciously... Just wanted you all to be aware.
hugs
Ramona