Welcome, Guest. Please Login
MCD - Mast Cell Disorders
  YaBB is sponsored by XIMinc!
  HomeHelpSearchLogin  
 
Pages: 1 2 
Send Topic Print
sleep disorders? mast cell related (Read 9363 times)
Sunny
Rookie
*
Offline


I Love YaBB 2!
Posts: 16

Re: sleep disorders? mast cell related
Reply #15 - 09/12/11 at 01:15:00
 
I take Zyrtec at night also.  I can usually trace my sleeplessness to too much coca cola.  Also have the same reaction to root beer.  I took Xanax many years ago and had a huge reaction - my face was one big hive.  My eyes swelled almost shut.  It amazes me how we all have different reactions to meds.
Back to top
 
 
IP Logged
 
jbean
Mentor
****
Offline


I Love YaBB 2!
Posts: 286

Re: sleep disorders? mast cell related
Reply #16 - 09/12/11 at 14:18:45
 
That's weird about the cola and root beer Sunny.  Those same two things bother me as well!  What's up with that?
Back to top
 
 
IP Logged
 
daowebe
Tutor
**
Offline


I Love YaBB 2!
Posts: 34

Re: sleep disorders? mast cell related
Reply #17 - 09/14/11 at 23:41:13
 
I have sleepless nights as well.  If it last 3 days I find myself having visual hallucinations.  Everything I take says it causes you to be drowsy but not for me.  It aggravates my symptoms and makes it harder to deal with them.  I try not to get frustrated because I've found that a good attitude is the best medicine.  I think it may be a 'chicken or the egg' thing.  Am I not sleeping because I'm about to start into a flare cycle or am I starting into a flare cycle because I am not sleeping.  Not sure but I add an extra dose during the night if I'm up anyway.  I've tried to document everything but the only thing that seems like it might be relative is my menstrual cycle.
Back to top
 
 
IP Logged
 
Joan
FORUM ADVISOR
*****
Offline



Posts: 1502
Colorado
Re: sleep disorders? mast cell related
Reply #18 - 09/15/11 at 12:07:39
 
Some root beer now contains caffeine.  That may not be the problem, but worth checking the labels.
Back to top
 


Joan
 
IP Logged
 
Lisa
FORUM MODERATOR/ADVISOR
*******
Offline


I am not a doctor.
Posts: 1499
Volta Redonda, RJ Brazil
Re: sleep disorders? mast cell related
Reply #19 - 09/15/11 at 12:25:35
 
Daowebe, lack of sleep is a known MC degranulator.  So, if you are not getting enough sleep, this is putting you into the flares.  

Now, what is causing your insomnia, this should be investigated for we can't always blame everything on masto, even though it sure would be easy to do so!!!

So, I suggest you see a sleep disorder specialist and do a bit of investigating into this.  It could be your meds, but then there could be another factor involved.

I hope this helps!

Lisa
Back to top
 

Don´t forget, there is so much more to life than being sick!
 
IP Logged
 
missybean
Mentor
****
Offline


I Love YaBB 2!
Posts: 439
Washington
Re: sleep disorders? mast cell related
Reply #20 - 09/15/11 at 12:28:50
 
Have you tried melatonin? It works awesome. I don't take it anymore because of all the other night time meds I take. But man that stuff works. I have yet to meet someone who has tried it that said it didn't help to some degree. They say as we age we make less melatonin ourselves and all the artificial light we are exposed to effects our bodies ability to produce normal amounts of melatonin. Stress, trauma....things like that can even effect melatonin levels. Some hospitals have even started giving 3mg of melatonin at night to there ICU patients to help them get better sleep and they say it is working.  
Valerian root, it works to calm me down. I haven't taken it for years though. One of my girlfriends takes it when she feels anxiety coming on and she says after that she is cool with anything.....we laugh about, I ask her....did you take your V today? Lol!
Hydroxyzine is sedating. Works good! You can take up to 75 at night. You have to start slow. It's a good antihistamine.
I have taken zyrtec at night and had no issues as well.
One more other thing is calcium can induce sleep, you've probably heard of a warm cup of milk at bedtime. Tryptophan is the amino acid that the body uses to make serotonin, the neurotransmitter that slows down nerve traffic so your brain isn't so busy. Calcium helps the brain use the tryptophan to manufacture melatonin. This explains why dairy products, which contain both tryptophan and calcium, are the top sleep-inducing foods.
Just so you know melatonin can give you some vivid dreams but it usually only lasts a few nights.
I hope you can find something that works for you. Getting broken sleep or no sleep is like torture. I'm dead serious when I say that. Torture! I've been there......problems with frequent waking most likely caused by fibromyalgia. Do you have fibromyalgia? Sleep problems are one of the main problems with fibro.

http://www.webmd.com/sleep-disorders/news/20110119/light-exposure-may-cut-produc...
Melissa
Back to top
 
 
IP Logged
 
daowebe
Tutor
**
Offline


I Love YaBB 2!
Posts: 34

Re: sleep disorders? mast cell related
Reply #21 - 09/15/11 at 13:00:37
 
I believe you are correct Lisa.  I think the sleeping problems are actually related to my seizures.  I have had a sleep study but it did not provide any information that was useful to my neurologist.  I have also tried sleeping medications but they give me bad side effects.  In my 'pick your battles' mentality, I have been dealing with it.  I've made some changes in my medication a week ago, which seems to be helping.  In November I go back to the Immunologist and am planning on asking her to work with my neurologist or suggest a neurologist that is familiar with masto to see if there is something else we can do.  I know the two are intertwined somehow but it is unclear to me what is causing what sometimes.  Right now we're working on getting my mast cells to better deal with the seizure meds so I can get to the next higher dose.  The only thing that seems to make everything worse is when I am pre-menstral.  As you pointed out, it may not be the masto but that has always gotten worse then.
Back to top
 
 
IP Logged
 
Pages: 1 2 
Send Topic Print