Hi All-

Are bony tumors associated with mast cell disorders? I am DXed with MCAD and have just been DXed with existosis on the top of my foot. It looks like 2-3 of golf balls have started growing on the top of my foot. They are hard & not painful.

I have heard that bone changes DO occur in mast cell disorders. The literature is full of information about steopenia/osteoporosis, BUT I thought excess bone was also indicative of mast cell disorders. Am I right? Does anyone have a link to a study?

Thanks!
Julie

Thanks for keeping an eye out, Ramona. I appreciate it. I've been perusing the literature & found out that in addition to osteoporosis, osteosclerosis (a densening of bone) IS related to mast cell disorders http://en.wikipedia.org/wiki/Osteosclerosis  Now, whether or not, my bony tumor falls into the osteosclerosis category remains to be seen. I'll wait and see what the orthopedic has to say.

Thanks again-

Julie