godsgal I can understand you find that a bit scary and distressing, and at the least just really annoying. I think I would be consulting a doctor who can check it out and identify the reason for it.  In person they will be able to do some basic evaluations to rule out some fundamental concerns.  It's adding to your stress levels too, so if nothing else the reassurance of a doctors opinion might help ease that.  There is a limit to what can be determined at a distance i.e over the interent.  I think I would also go easy on the stretching until you know what is causing it.  I hope you get some relief from it and some answers soon.

Ruth

I agree with Heather... It might be associated with the masto, and might not be. It sounds like you have some swelling and/or injury in the spine or lower neck area. Did this disappear when you were on prednisone then re-appear when you went off of it? Do you have any swelling under your under arms? I would not try to do that stretching right now until you see the DR and let him see whats causing it.  I dont think thats a true neuropathy, it sounds like an injury instead, Please let us know Hon, we do care
Hugs
Ramona

Jared,

Several times I have had allergic reactions present like you describe. The symptoms are VERY neurological, but stop when I identify the trigger and stop taking it.

The 1st time, I was taking turmeric as a supplement. After 10 days or so the tops of my shoulders and back of my neck began burning- like the worst sunburn ever. I even went to my GP and begged to be treated for shingles. I thought they just hadn't shown up yet. When I finally realized it could be associated with the turmeric. I stopped it & the burning receded almost immediately.

This last Christmas, my Reynauds was so severe (black fingers & toes) that my doc put me on Norvasc. My chin became numb- as if I had frozen it- been out in the cold too long. Additionally, my MCAD symptoms also dramatically worsened- tachycardia, low BP, etc.  I cut my dose in half; my symptoms improved for a day for a day or so...then returned with a vengeance. The numbness spread to my mouth and tongue. I finally KNEW it was an allergic reaction and stopped. It took a full 3 weeks for the symptoms to recede. They lessened a bit every day. Very scary.

With your DX, you can't rule out an allergic response. I know you just started new meds. Might be one of them... What does Dr. Afrin say?  

Julie

I have had that sensation when I am gonig through shock symptoms.  It is very uncomfortable is it?  Like a bad burning sensation and all prickly all over?

I was told it was the mast cell mediators that were stimulating the nerves.  I just spoke with a neurologist about it the other day.  She said it was a transient effect.  I have had mine last all day too.

However, I agree with the posts above.  There are other conditions that could present with similar symptoms.  Best to get it checked out.

I just had the bone marrow done a few days ago.  So we'll see what that comes out to.  

I'm out of the moldy house now.  I have talked to all my doctors, even the ones at Mayo about the mold and they know nothing about it.  I'm at a loss there.  

My tryptase has always been normal....7, 5, 5.

Mold issues are not understood by many doctors. If you are lucky, you won't be one of those who stays sick after getting out of the house. Just keep it in mind, if the doctors can't find the cause of your symptoms, it might be worth checking further. I would be happy to give you some ideas where to go.

I know this is true, because I have been through it myself, and went through treatment that helped.

Whatever is causing yours, I hope the doctors can figure it out and find something to help you.