Dear All ,
I posted a week ago about my clinic appointment that had not gone well but I had argued my corner and was hopeful it had made a difference .
I had the letter today and it was ok .
He didn't blame it all on stress or emotion
or call it functional ( new word for psychosomatic )
He has stated what evidence he sees :- that I have idiopathic angiodema and ertthmatous rashes on my face
and that at more evidance is needed :- to prove anaphylaxis :- BP drop , oxygen level drop or airway compromise
He really wants a high tryptase .
From his perspective that is the case . As he doesnt have all my notes as I have moved area . I have my 911 (999 ) calls and paperwork coming and am requesting notes from hospital to give the whole story The clinical evidence is there - low oxygen , air problems , flushes ( burning red nettle rash ) , vv high blood pressure .
I have low recorded but on a home BP cuff .
So he has left it open for me to prove it .
He has in spite of him not having evidence of mast cell activation - recommended - vestril ( hyroxizine ), and doxepin .
So he is treating me as if i have
I am starting the vestril on monday
Doing one at a time xxxxxxxx
many hugs
Josie