Unfortunately, that's the standard run-around with getting a diagnosis for this.  Hang in there and keep pushing.  You've got to keep at it to get the answers you neeed.  We've all been through it.  Yes, it is very discouraging, but the sad fact is that you have to push back to be your own advocate when you have something out-of-th-norm going on.

Chin up, you'll get to the bottom of it!

Hang in there Josie! Ramona, you are so funny. I like this spunky side of you!
Melissa

Hi Ramona , mellisa and JB

Thanks . Ive dusted myself off now and am ready for the next round!!!!!!!!!!!!!!!!!  

ding ding round 45 xxxxxxxxxxxxx I dont think its as many as that , but yeah , im ready xxxxxxxxxxxxxxx

with being in the chair im better placed for worse damage !!!!!!!!!!!!!!!!!!

I ahve ordered my 999 calls and paperwork so proof is on its way .its so hard when you know the reality of what you are dealing with. But once ive collated I am going to push for an earlier appt . You right 3 months is too long . my throat close comes within 3 mins of my first symptom now so i know hes playing with fire . But he cant see any smoke so to him there is no fire .

Steriods give me longer but they wont prescribe any more , so I am keeping the 30mg of prednislaone I have incase I need it  .

Its a case of I am too good at looking after myself .  

Since I learnt about masto I have felt idolent systemic fitted . But my tryptase is stubbornly ok . So until I can convince them to do other tests - prostoglandins . the decision is no masto and also No sodium cromulate. I am seriously considering buying it from the states . but i don't think I can afford it . I am on disability here .

hugs
Jose

much love
Jose

OMG , I use that all the time Thats so cool . My partner says you say because your a nurse I think we just think alike

Thanks I will check it out and yeah I may ask you to do that , allegra is availble over the counter with you now . I had to stop it because it was a big pill with lots of corn starch . My bowel was in pieces and my body started physically rejecting it . Like it was saying no thanks , you havent got the hint with 8 times a day bowel actions and excruicating pain so were going to reject it .

So liquid allegra would be fab xxxxxxxxxxxxxxxxxx Could you check out the other ingredients for me ?????

Ill cost it up for a months trial of allegra and nasalcrom if I can't get it here

Thanks so much xxxxxxxxxxxxxxxxxxxxxxx

many hugs
Jose xxxxxxxxxx