ruth
Guiding Light
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I Love YaBB 2!
Posts: 208
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I've been posting on Judy's thread but bringing my comments here again so as to leave that conversation to get back to judy's son and his story. I had a couple of lightbulb moments yesterday, well maybe tealights, not earthshattering but thoughts that help me persist in thi frustrating jrney. one very cocnrete idea I had, not radical at all, but will help for us.
Cameron has only just gone onto regular medications recently, up ntil now he has taken meds for symtpom releif as required, except after some of his very bad episodeds a few years ago. He's pretty good now about taking them morning and night, but every so often he forgets, and goes a couple of days without any, and it's only a few days later I will realise. He hates talking about how he is feeling, hates focussing on his symtpoms, and as a teenaged boy doesn't like me quizzing him and checking up on him. And ususally when I ask he has had them and it annoys him to think that I don't trust him or soemthing. I am going to get one of those weekly medication boxes, with little boxes for each day to sort the tablets into. I had always thought they were just for old people with memory problems and dementia, but it will actually be a good prompt for him, and more importantly I can check whether he has taken them without having to ask him and annoy him. Simple and obvious, but took me a while to think of it.
The other thing I thought about yesterday is shadows. I am thinking this 'condition' that causes all the things he feels, whatever it is, is castin a shadow - that's all we can see for now, the shadow. To me this shadow looks an awful lot like it's being cast by a MCAD, it looks just like the shadow it would cast, but until we can get a look at the actual entity casting that shadow we can't be certain that's what it is. Sometimes it's cloudy and the shadow becomes a bit indistinct or disappears altogether, and I find myself wondering whether I imagined it, only to have it reappear quite clearly. So when I find myself thinking I am chasing shadows, which is how this fees often, I am, but that doesn't mean it's a waste of time, I just having to keep looking for the '3D reality' casting that shadow and know that I'm not imagining it. I also have to remember that while we only see the shadow, other things can cast a shadow that looks very similar if not identical, and we have to stay open to that.
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