Hi jaxx and Ramona xxxxxxxxxxxxx
Hi jaxx ,
I understand how frustrating it is trying to work out your triggers and how to manage all this .
I thought I would tell you about my path to working things out and where i am now . I had my first A&E level reaction in dec 08 . I thought the sulphites in the wine and pizza was the trigger . i presented at A&E . i should have called an ambulance . As soon as the receptionist saw me , she called for help i was put in the top bed , connected up - Pulse of 180 , red and swelling , breathing very fast . They epipenned me and gave me the other drugs . All hopsitals ahve an anaphylaxis protocol .
I don't let myself be scared . i carried on the same until the may , by then I ahd had 8 epi pen level reactions . I thought I was helping myself but I just focused on one trigger and did not have full info on that .
valantines day , I had frozen fish in batter and chips with vinigar on . This was my first full throat close . i managed to get the epi pen in in time .
I had no idea what out of all of this that evening set me off . It was those triggers mixed with a major emotional upset a week before .
It has only been documenting every reaction , even minor ones that led me to work out my triggers and find connections . Like :- gelatine - I reacted to medical examination gel , a pork pie and heart monitor electrodes .
Having a grip and avoiding what I can has led to me having less shocks and less day to day symptoms . I have felt it is all pointless and that i was waiting to be run over by a bus , just didn't know when or how badly i was going to be hurt .
Then I got it . My Epi pen worked . It gave me time for medical care to get to me .
i see you are being investigated . I have been tested so much , I am nearly idiopathic - don't know why in medical terms . I am tryptase negative , carciniod negative , autoimmune negative . heridaory angiodeama 1 and 2 negative .
So in all this we know I am allergic to cats , grass and dust ( IGE positive ) .............................................................................yep
thats it . BUT I do have anaphylaxis from the non- ige route .
Only decant medication and listening to my body has led to less reactions . i still have daily symptoms and am particularly sensitive to some triggers . Mine are infection , hormones , heat , physical and emotional stress . foods wise sulphites of any description , alcohol , fermented products , gelatine , corn flour .
We all like having our ( foggy ) brains picked . As ramona said you are normal . xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
hugs
Jose