The lab report states, "Scattered CD117 positive mast cells are identified.  Now that was in the core/bone as they did not receive sufficient marrow or aspirate to evaluate for mast cells. Can anyone tell me what "CD117 positive" mast cells means or if it's normal for them to be present in the bone?  I didn't get a copy of the results until after my appointment so I didn't have a chance to ask the doc and my next follow up isn't until after the redo.

It further states, "Examination of the Prussian blue stain bone marrow biopsy demonstrates decreased iron stores."  I realize that was on the core/bone and not the aspirate/marrow, but was that the right color stain for evaluating for mast cells ?  I think I read on another thread that color matters.

Lastly, does anyone here with systemic mastocytosis have chronic leukopenia or low wbc?

The report does say that if there is clinical concern for systemic mastocytosis that a repeat bone marrow is in order.  The prescribing doc recommended it yet I'm torn because of the cost.  It doesn't help that I can't have pain meds or sedation.  The procedure itself aggravated my muscle and joint problems (I have EDS3 and a metabolic myopathy), leaving me now dreading the thought of having to repeat it.   What to do?