Hi there,
I have been following this forum for the last few months whilst undergoing testing for an illness that I have been suffering from for the last 12 months.
I have had many tests over the last 6 months and seen many specialists however I keep hitting brick walls. From what I have read on here I am not the only one
I would be really appreciative if someone on here could please look at some of my test results and provide an insight to their thoughts. I am unsure what you will need as far as blood test, however I will give a bit of info now and I can get more info if needed.
I have had a skin rash for 12 months all over my body presenting like hives. I suffer from Headaches, light headedness, fatigue, bone pain, joint pain, swelling, vomiting, stomach pain, muscle cramps. minor occasional bruising, frequent bowel movements...
Current Meds are Zyrtec morning and Night, Zantac 300mg morning and night, Vitamin D and Calcium supps 1 per day, Micardis plus for Hypertension, undergoing uv treatment 3 times a week for the last 3 months.
I am currently seeing a dermatologist who has been getting some things moving for me however I am unsure about the direction being taken.
I had a skin biopsy done in October last year, results are:
Multiple levels have been examined. There show hyperkeratosis and slight spongiosos. Papillary dermal oedema is present. There is telangiectasia. No vasculitis is seen. There is superficial perivascular lymphocytic infiltrate with intermingled mast cells and a rare eosinophil.
Mast cells stain shows this cell type to be increases on both biopsies although the cells have degranulated. This raises the possibility of Urticaris Pigmentosa but is not definitely diagnostic for the latter.
I then had 24 hour urine histamine test..
Histamine Range(0.0-0.8) - my reading is 1.2
1-methyl hist. Range(0.0-1.5) - my reading 1.7
At this stage I was informed I Have Masto UP however need to find out if it is systemic or not by further testing...
I went on to see a rheumatologist - refered me to have abdominal ultrasound (this will be done latter in the week) and usual bloods however she told me she could not help me.
Now I am also seeing an Allergen Specialist - this blood work has come back with the following...
ESR Range(1-20) my reading 26
hemaglobin, pcv, rbc, mcv, mch, mchc, rdw, platelets, white cells, meutrophils, lymphocytes, monocytes, eosinophils, basophils all within normal ranges.
Anti thyroglobulin ab Range(<4.0) my reading 85
Anti tpo antibodies Range (<9) my reading 84
TSH range(0.35 - 4.9) my reading 1.21
Tryptase Range(0.0-15) my reading 9.6
The allergen Spec told me he does not beleive it is Masto and feels it is "Self Auto Immune disease" however he is unsure as to why I am having all the other symptoms...
I am booked in to see the Masto researcher at the Royal melbourne (I am in Australia) in April. That is another 3 months away in the meantime I am getting worse day by day and just want answers now...
Sorry for this being so long winded but I have just about had enough.. Please provide me with your thoughts and any avenues you think I should try.
Thank you
Tracey