Hello - I was diagnosed with mcad by Dr. Afrin a few years ago. After he relocated to Minneapolis I contacted an oncologist near Atlanta who started me on Gleevec which is what I wanted to do. The Gleevec helped somewhat however I became sensitized to it and could no longer tolerate it, even at a very small dose.

Does anyone know of a mast cell expert near the Atlanta area(4 or 5 hours drive)? I would like to find another Dr. who does research in Mast cell disease.

Thank-you,

rd

Hello LadyBug - I was seeing Dr Thomas Seay associated with Atlanta Cancer Care. He told me that he sees 2 or 3 people a year with mast cell issues. Initially he contacted Dr Afrin get up to speed on my history and advice on the Gleevec.

After the Gleevec started causing me problems I decided to discontinue visiting Dr. Seay. His office is associated with Northside Hospital and office visits are considered out-patient visit with a hefty co-pay.

I haven't heard of Dr. Winton,  but I certainly will follow. Dr. Afrin told me on my last visit that he preferred that a doctor contact him, however I did call him after Gleevec started causing problems, and asked his advice. He called back at the end of the day.

Thanks for your information,

Rick