I´m thinking Lichen planos - bulhosa?

I have a stomatologist who has suspected this with me when I began having mysterious inflammation and a few blisters and ulcers but he couldn´t pin it down and he´s still keeping me under investigation.    He´s sure it´s the masto in some aspect or other.  

See if you can find a stomatologist to take a look at this.   It´s worth the hunt!!!

I hope that helps.  

Lisa

You mean blisters like that? http://en.wikipedia.org/wiki/Aphthous_stomatitis

When I suffer from strong mast cell activation I sometimes get these. The mast cell mediator TNF-α seems to be the cause of this.

I don´t know, sounds like lichen planos bulhosa to me.   It can do this and it´s autoimmune related.   This is what made me think of it.  

Whatever it is, I´m sorry for the issues!!


Get them to get a biopsy and run it through the immunohistochemical for masto!!   Lets SEE what´s going on there!!!


Kisses!

See, that´s just it, I don´t iit!   My stomatologist has been investigating this for 2 years now and it´s slowly gotten better and only shows up every blue moon.  He´s a bit of a geek and knows autoimmune diseases that affect the mouth quite well and said he´s never seen the likes of this.   We suspect that the activity was triggered by the acute and sever case of stomatitis I had in 2011 but when I finally realized I needed to see an oral surgeon to figure this out I was already 9 months later and the sporadic inflamation and sores were beginning to taper off.  After that the situtuation was that it was never in a good spot to biopsy.  

What it reminds me of is the MC hyperplasias I´ve had happen.  SM is known to do and it´s a definite quirky finding in my case and I told this doctor about this fact about masto and he said, yes, this sounds plausable.    But this was the thing, I would get a point of redness, inflammation, and pain and within 2 or 3 days was gone with NO TRACES!  He was always so amazed because as you know there should have been some residual evidence and the sloughing off of the damaged tissues, but there wasn´t, it would leave NO TRACES of ever having had serious inflammation present, yet another finger pointing to an MC hyperplasia because it´s not real inflammation, it´s just a focal point of normal MCs.  

But I´m glad you´re not having any more issues and you´ve found the culpret!  that´s great!!


I hope you are well otherwise and not suffering as much as you had been when you first began your journey!!!!


Many hugs!


Lisa