AUGGHHHH!!!!  I'm currently in Clemson, considering moving here, and I thought how nice it would be to be *only* four hours away from him.  Well, if he's going anywhere near the Twin Cities, that's where my in-laws are, so that would work out too, if I'm ever stable enough to fly again.

Thanks for sharing this, and any updates you get.

Hi Futurehope, I know of a few doctors pretty close to you. I was looking for one for a friend in Florida so I talked to some ladies on a facebook support group.

Quotes from my personal facebook messages with a lady:

"There's Dr. Sami Nallamshetty in Tampa and Wesley Chapel. She's an allergist who studied with Dr. Castells in Boston so is up on mast cell disease. I've seen here once and liked her but haven't continued seeing her as it was too far for me to travel."

"I see Dr. Brett Stanaland in Naples.  His associate is Dr. Ron Purcell.  Both are familiar with MCAD and Mastocytosis."

"They all three consult with Dr. Castells and Dr. Stanaland has consulted with Dr. Afrin for me also.  They aren't experts but know enough to be able to get things going.  They still want to refer to Boston if at all possible though."

Another lady recommended Dr. Sami Nallamshetty to me too but didn't go into any details.

There's also Dr. Glover in Gainesville.

Quote from another lady:
"My GI diagnosed me with the mast cell disorder she specialize in it.. She is at Shands in Gainsville florida. her name is Sarah Glover she is amazing.. very smart and loving person.."

Dr. Glover also has mast cell activation syndrome listed as her clinical interests on her profile and has co-published on it. So I'm thinking she may be the best doctor near you for GI issues from MCAD.

So not up on Dr. Afrin's or Dr. Castells level but may be good enough for many people.


Dr. Sami Nallamshetty:

http://flallergy.com/Meet_your_doctor.html

Dr. Brett Stanaland & Dr. Ron Purcell:

http://www.naplesallergy.com/id1.html

Dr. Sarah Glover:

http://gastroliver.medicine.ufl.edu/about-us/meet-the-team/sarah-glover-do/

Dr. Glover's MCAS co-publication:

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3346686/

Thank you Bruce and Kesasur for your help. It is much appreciated.

Bruce, can you share where your Facebook Support Group?  I may need them. Thank you.

Bruce, those names were given to me on a letter from Dr. Afrin.  If I were interested, I would Google them on the internet to see what their biography says.  I would also call their office.

Personally, I am unfamiliar with any of them other than what people say on this forum.

Dr. Afrin is open for business at U of Minnesota...and you can get in really quick. No 6 month wait!!!  

He sees patients on Tuesday, Wed, Thursday in the clinic. If you are traveling from out of town plan on staying 3 days.  

Call 612-625-5411 to schedule an appointment.