Hello all,

I suffered with Chronic Urticaria and Angioedema for two years. I have recently been diagnosed w/MCAS.

Twice a day, I take one Ketotefin pill (H1), one Zyrtec (H2), and 300 mg Zantac. This has been working for me pretty.

This all started when I received a flu shot two years ago. I do not know if the flu shot triggered all this, but I developed huge welts after that shot along with angioedema.

I hope to learn as much as possible so that I may help others along the way.

Thank you all in advance for your support. I am so sorry that you have to be here.  

I don't mean to interrupt Ladybug's thread (welcome Ladybug!), but Aggie... are you using any supplements to deal with menopause?  The hormonal changes alone could be enough to cause your symptoms, but your posts have made me wonder...

Heather

Aggie....have you asked your immunologist/dermatologist about getting on Xolair for the hives?  It is in stage 4 trials, about to be approved for the treatment of chronic hives.

Thanks for the welcome, all.

I am a bit anxious about my first GI visit this Monday. I have a list of my problems (including indigestion) along with MCAS diagnosis. I sure hope he will do an endoscopy and colonoscopy and do the right tests for mast cells and whatever else they could/should do.  

The following week, I see a dermatologist. I have three different growths on my skin doing their won thing to be looked at and/or biopsied. The one on my back was bleeding. My allergist called it a lesion, but I think I scratched it open. I am anxious about both of these tests.  

I am also trying to find out about H3 and its relationship to weight gain when out of balance with the other H's due to blockers, etc.

You are all remarkable!