PatP
Rookie
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Posts: 5
Massachusetts
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Hi,
I'm new to the mast cell disorders world and am really glad the forum is here.
I just learned about MCAD a couple of weeks ago and was amazed to learn that many of the symptoms I've had over the years are common in MCAD. I'm in my 60s and some symptoms started in my teens, with new ones popping up every decade it seems. No one's ever been able to expain why I have so many different medical issues, across so many different body systems.
My symptoms and diagnoses have included extensive allergies, IBS, GI tract pain, shortness of breath, rhinitis, autoimmune dry eye, eye pain, blurred vision, lactose intolerance, salicylate sensitivity, chemical sensitivities, flushing, tinnitus, eczema, osteoporosis, costochondritis, lymph node swelling, autoimmune hypothyroiditis, fibromyalgia, fatigue, depression, brain fog, migraines, mitral valve prolapse, endometriosis, PMS, cervical disk problems, and sleep disturbances.
I'm kind of excited that I might finally have some answers about why I go through all this stuff, and effective treatments. Eliminating exposures over the years has reduced some of my symptoms, but not nearly enough. This past week I started using Allegra every day, and I'm happy to see it's helping my breathing and brain fog.
I live in the Boston suburbs so called the Brigham & Womens Mastocytosis Center. They're sending me some info, but beyond that I'm not sure what to do since I don't currently have a primary care doctor.
I was told by Brigham & Womens that if I send Dr. Castells info about my medical history there's a chance Dr. Castells would order the tests since I'm local. But it's not definite plus I really do need a PC anyway.
Does anyone have any recommendations for PCs north or west of Boston who have MCAD patients, or at least have an open mind? (And hopefully a good bedside manner!)
Thanks for any help...
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