Glad to have found this forum, SO much helpful information!

My name is Aimee and I am newly diagnosed with MCAS.  I live in VA but traveled to SC this summer to see Dr. Afrin and for the first time in my 41 years actually had someone make sense of all of the seemingly random and unusual health issues I have ever had.  What a huge sense of relief!

While I am thankful for the diagnosis, it appears that treatment is as challenging as figuring out what was wrong.  I have a lot of questions and will likely be posting ones that I can't figure out clearly on my own, so thank you all in advance for your help!

I also have a diagnosis of POTS and am particularly curious to find out from those of you who also suffer with this if you found resolution of your POTS symptoms with MCAS treatment.  Holding out some hope that you did!

I am married and have 4 boys and am trying to restore my health as quickly as possible to be able to do all (or at least some!) of the things I used to do with my family and friends.  I have been essentially homebound for the past year as a result of sever POTS and MCAS symptoms.  Prior to that I had been acutely ill with Lyme disease since 2009 but hope that I have successfully put that into "remission" and that my current issues stem just from the MCAS.  

Thankful for a place to come to learn and share!

Welcome!

I also have MCAS and POTS. Was really bad at first but figuring out my triggers, sorting out meds which ones work and which don't, unscenting and unchemicaling my life, and gradually building up excercise the POTS has essentially disappeared well at least to the point it doesn't get in my way, and I just still need to stay away from my triggers.

Don't give up

Lots of hope!