When I first got sick anaphylaxis and steroids tore me down to bed bound. I used to be active and do weights. Not bodybuilding or anything too intense.

Initially any exercise or heat would trigger me, but I started as small as I could (leg weights on in bed and when walking around the house) and slowly added more on my stable days with breaks when a big unrelated reaction would set me back. I did/do whatever it takes to keep cool using ice packs cold water etc, then I used a seated foot peddle bike. I also had "POTS" which was holding me back

Now, I can run 10 km four times a week, 3 days of weight training plus yoga and Pilates. I bike and hike too. I am so thankful. The progress was so slow it felt like paint drying

I still have to take days off if my reactions are a mess which I wouldn't have pre illness and it takes more planning to fit in in and make sure I have emergency meds with me

I can't go to gyms as the scents trigger me so it's all at home and outside.

On my post weights days I get muscle soreness but no associated flare

Exercise always flares me a bit during but I've been able to slowly work up what that takes and I feel better and more stable
Overall after. Stress wise it's a huge help. Initially running half a block made me hot and itchy, now after ten km I feel fine.

I'm planning to continue to push myself in this regard as the threat of anaphylaxis demands a heart in peak condition! I want to survive whatever this illness throws at me

We are each different and our triggers are different so it's a matter of working and pushing within the confines of our limitations and seeing what you can do

Let us know how it goes

Good for you!

Yes when I start to think I'm tired or running is feeling hard I remind myself how thankful I am to be able to and think "two years ago you couldn't stand! Keep going"

I should mention that running is used loosely ; its a slow jog and before that started as a walk/jog

There is no forward baby step that is too small not to be worth taking