Hello All,

I currently have a rash that is a malar, or butterfly, rash across the bridge of my nose and cheeks.  It is flat, but sometimes peels a bit, and gets worse in the sun.  This is a recent symptom.  

This is a classic symptom of lupus, but I really don't think I have lupus (not many of the other symptoms).  

Does anyone else experience this as a symptom of a mast cell disorder?  

Thanks,
Larken

Masto does not typically give this kind of rash.  This is Lupus.  There are plenty of masto patients who have comorbid Lupus.   Ana is correct, this needs to be fully investigated because when we compare the two diseases, it's Lupus which poses more of a threat especially if it isn't kept well under control.

Lisa

Thanks for your replies, everyone. Anaphylaxing, it was useful to hear that you experience this as part of your mast cell disease.

As everyone has recommended, I agree that I should probably get tested for Lupus, if only to rule it out.

I have asked my mast cell specialist via email to let me know if he thinks I should be tested, so we'll see what he says.

In the mean time, if anyone else has this rash as a symptom of mast cell disease, I would be interested in hearing about it.  Or, if you have Lupus and MCAD, please share your story.  Thanks!

Glad to hear it Larken. My ANA is weakly positive and we are still ignoring it.

My malar rash shows up anytime I'm exposed/triggering and one of my triggers is sun and heat so that would make me way worse too. I bring ice packs when it's hot to put on my face. My face gets red for other reasons but I know it's a reaction when it crosses the bridge of my nose.