I already know without having to ask that many of us get tired of people suggesting we try this or that or the reactions we get from others who think we don't look that sick. The following may have been posted on here somewhere already and I'm sorry if I'm duplicating it. But when I ran across this today it did WONDERS for me and I want to share it with you. Check this advice out:

http://bobisdysautonomia.blogspot.com.au/2013/02/well-at-least-its-not.html?m=1


When you are ill, particularly chronically ill, you are inundated with helpful little tidbits from well-meaning family, friends and even, on occasion, complete strangers. I thought I'd dedicate this post to the one that seems to be a favourite of the well-meaning brigade, and one that really ticks me off.

"Well at least it's not [insert disease or life circumstance of choice]."

I am yet to work out how this is helpful to the person being addressed. In many respects it assumes that the person has lost complete perspective and is simply over-reacting and whiny. Unless your head is so fully up your own arse that you couldn't pry it out with a crow bar, you know that there are worse things in the world.

No one is immune from loss and illness. We all have tragedies in our lives. Unless you live under a rock you know their is suffering around the world in the form of war, violence, famine and natural disasters, every day. On a smaller scale, there is the personal loss of loved ones and unexpected health and life crises. For myself, I've worked in palliative care. I have worked with women who survived the atrocities of the war in The Balkan's, during the 1990's. I have even helped my sister bury her nine-year-old son. Like most people, I'm pretty up there on the understanding that there are people enduring far worse circumstances than my own. You really don't need to remind me.

When you give someone the "at least it's not..." line:
•You are being nothing short of dismissive and trite.
•You are negating their experience.
•You are telling them that they have no right to what they are feeling.
•You are telling them they have no right to express that feeling.
•You are telling them to be silent.
•You are telling them that their distress is unwarranted.
•You are making them feel guilty.
•You are making them doubt themselves.

Is that really helpful?

Does it provide any solutions?

Any useful advice?

The simple answer is NO!

Suffering is as individual as those experiencing it. What one person can bear another will find an overwhelming burden. How can you compare such a personal experience? I know that other people are suffering and that for some their suffering is beyond intolerable. That doesn't stop me, or any other person, from feeling overwhelmed, or scared, or sad, or lost, or angry, or any of the other million emotions that arise with chronic illness. It doesn't mean I don't need support. It doesn't change my circumstances. It doesn't make my suffering any less real. And it doesn't mean that I think my suffering is worse than that of another. But, it is mine alone and it's salience can only truly be interpreted by me. Where is that line in the sand that says, yes you finally have suffering worthy of complaint? And who decides what the line is?

The reality is, that whatever anyone's life circumstances, be it illlness, or loss, or...., there will always be someone, somewhere whose experience could be classified as worse.

Negating or silencing someone's experience is not an act of kindness. You do not need to understand someone else's experience to be able to show compassion. To let them speak their truth. To let them release that burden so they can start to pick their feet up once more and take the next step. Compassion costs you nothing but is priceless to those who receive it.

Chronic illness is a long and often frustrating journey. It has no clear parameters. Some days it is better, some days it is worse. Often you can't predict when either circumstance will occur. We experience loss in different forms, jobs, life roles, financial, social, our sense of self. We experience pain both physical and emotional. We have burdens a plenty to deal with. Why should we also be made to feel that we must justify our right to feel upset or overwhelmed.

I, like most patients, know in many respects I am lucky. I count my blessings each day. But the days it gets too much and I'm barely holding on, a kind word or a listening ear is what is needed, not a patronising reminder to keep silent as others have it worse.

Think about what you are truly saying when you utter those words. Or you just might find yourself beaten, albeit very slowly, to a bloody pulp by my someone's arms of patheticness.


Cheers

Michelle