I've wondered how prevalent this unacceptance of inhalants(fragrances etc.) as triggers is among doctors. Is it only encountered among non-MCAD-specialists?

I've recently had a lady ask me about this as well, as a mayo doctor didn't want to discuss anything about inhalant triggers with her.

This skepticism by this doctor in the original post is very weird. I sure wish our mast cells discriminated against inhaled molecules that reach them and were like "Oh you're from inhaled origin so I will just ignore you". lol

And when he says "there's no tests or evidence that it happens". They would know that someone reacts to inhalants the same ways they would know people with MCADs react to ingestants, such as by patients telling them they get symptoms rapidly with fragrances etc. and with measuring mediators before and after a controlled provocation, or by exposing the abnormal mast cells in petri dish to inhalant chemicals.

He makes it sound like there's no way to demonstrate that people with MCADs have intolerances to inhalants as if they have tests that only work when people ingest or touch things.

I can't conceive of how they could possibly have evidence people react to ingestants but lack evidence on inhalants as triggers except if they only neglected testing or listening to patients concerning inhalant triggers.

If I was a doctor that had never heard from a patient that inhalants triggered their symptoms I would think, "even though I've never heard about it before in the scientific literature it makes a lot of sense since in MCADs they react to all kinds of molecules and it wouldn't matter how the molecules reached the mast cells." And I would be interested and ask the patient more questions.

Instead the doctor seems to be like "well inhalant intolerances in MCADs have been neglected and ignored in the scientific literature so I'm going to do the same when patients bring it up to me."

That really annoys me that it seems neglected like this. Why is this anyways? Is it uncommon in MCADs or what?

I wish there was some reputable website where I could link my family to a video or article discussing how inhalant intolerances can be severely disabling for peole with MCADs. Right now a lot of my family apparently doesn't believe there's a physical disease that can cause this and it must be mental or me being a paranoid health nut.

Hi Brigitte. My closest cousin, mom and best friend believes me, but I think about everyone else that knows about it doesn't believe it's a physical disease. Though I don't even bother trying to convince most people unless I will have to be around them regularly and need them to accommodate me.

Yeah it seems like any time doctors don't  understand something they want to attribute it to stress or anxiety even if you tell them you're not stressed or anxious.