ZWVMom
Rookie
Offline
I may not be perfect but I'm always ME.
Posts: 14
Carthage, Texas
|
Well, she did go into Anaphylaxis on Saturday, and of course the ER wouldn't do Epi, so, they did Solumedrol and Benedryl instead and sent us home with Orapred... I've got 24 meds in my arsenol over here, but, she's completely maxed out on meds, and we're using Benedryl right now, which is our last emergency med. We're so used to reactions, it's like 2nd nature now.... Zoe's completely homebound, attends school through Skype, and doesn't leave the house unless we're going to the ER or doctor's visit. It's the only way we can keep her reaction free. She's been reacting ever since we left the hospital after her EGD on the 18th... I know how to handle the whole reaction part of it, it's the GI Biopsy results I'm confused about... because they are greater than 20, does that mean that the major criteria for SM has been met? and, if so, what comes next? Her GI has no clue, and quite honestly, I'm so used to everything coming back negative, I mean EVERYTHING, that I didn't expect them to find anything... *lol* I mean, you hope that you get something concrete so you don't feel crazy, but you hope they don't, cause you will have to face the facts of the disease with your kid... not that I'm not doing that already, but kids with MCAS can outgrow this... kids with SM usually don't... do you know of a flowchart of anykind, that says hey, start here, then go here, then go here... etc?
|