This is how I actually got diagnosed with Masto.   We went to a very good dermatologist because all clothes make my skin burn, and then it progresses quickly to burping, nausea, brain fog, exhaustion, and then faintness.     (The doctor diagnosed me with a skin biopsy.)
Lots of regular Masto triggers make the clothing problem worse - like heat, cold, stress, wrong foods, being hungry, overdoing, sunlight, and more.    

This problem is much worse in the morning, and tends to improve some in the evening.    This gets so bad that sometimes I have not been able to leave the house, because I could not wear enough clothes!  

Currently I wash the few remaining items of clothing that I seem to ever be able to wear, in water only.   In a washer that has never had any type of detergent in it.   Then, hopefully, after I hang dry it, I may be able to put the item back on.    

I do also have environmental illness - which I have had for decades - but this goes way beyond that problem.    

Any thoughts?   Ideas?

Anaphylaxing,

Wow - thank you for sharing!  This is so encouraging that now you can wear the clothes again!!!  So - there is hope!

I am also glad to know that you are feeling well enough to be reading on the forum!   I've been wondering how you were since your surgery.

Did you have to detox, or eat solely organic food, to get to this point?  Or, did gaining more control over your masto help with this?

I'm going to check out your blog.   Thanks!
BlueSkies

Hi Deborah,

Good question!   So many things happen, that with brain fog and everything I forget a lot of things.   But, this is what happened with me and meds...

When I was diagnosed about a year ago, the dr recommended I try Claritin.  The first day it helped a lot, I think it helped with the clothes, too.  (It was reducing my low level tongue & throat swelling.)  The second day it helped about half as much, and then after that it didn't help at all.   But the scary part was when I stopped it - I had a rebound effect, and I was worse off than before I tried it.

Since I have a history of bad reactions to meds - I was afraid to try any more antihistamines.  However, after reading more on this site, I am willing to give them another try.  I am going to see a new dr. in 2 days!   I am hoping he will work closely with me on meds.

But, since I was mainly thinking about helping the swelling with the Claritin, I had forgotten that it helped with the clothes.  (That's why I'm glad you asked!) I will talk to the new dr about that.

My diagnoses is Telangiectasia macularis eruptiva perstans Mastocytosis.   What a name!   Also called TMEP Mastocytosis.   Since I have so many internal reactions, I am wondering if I may really/also have systemic Mastocytosis.

I didn't mean to be so wordy.   Thank you for your thoughts!   If you think of anything I should ask/share with the dr - please let me know.  (I read your list to take to the dr - thanks for that!)

didn't see your post before, but i have burning skin pain all over. I as well use unscented detergent & softners for my wash. The clothing that works the best for me is silk. I wear silk under most of my clothes. The for dress shirt & pants microfiber. It's very light weight, but the problem is doesn't hold any body heat, that what the silk does. I also make sure my skin is good & moisturized. Nothing worst that dry skin.
Since I'm nasids intolerant not many meds to help. Key one is ketitofen & then for the pain tramadol. Mine is oposite of yours mornings are my best time, afternoon & evenings worst. But take some liquid benedryl at night to help.
MikeV