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Flu - tamiflu (Read 14660 times)
Julie
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Flu - tamiflu
12/15/12 at 08:37:30
 
Hi,
I thought I would re-post this in another category. Can anyone
tell me about any reactions to tamiflu?  I have the beginning
symptoms of the flu and wondered if I could take it.
Thanks for your in-put.
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DeborahW, Founder
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Re: Flu - tamiflu
Reply #1 - 12/15/12 at 15:57:27
 
Sorry, never tried it. Anyone else???? Chime in right away please if you have any input.
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Re: Flu - tamiflu
Reply #2 - 12/16/12 at 04:53:08
 
Sorry, I'm no help either never took it.  I was told though NOT to get the flu shot.
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Joan
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Re: Flu - tamiflu
Reply #3 - 12/16/12 at 13:02:31
 
Pam, Who told you not to get the flu shot and do you know why they said it?  I was told to definitely get the flu shot, as it's a killed vaccine.  The reason is that flu viruses can send the immune system into orbit and cause damage by elevating mediators.  At least on me, the vaccine didn't cause any more than a few aches the first few days.  Nothing Tylenol couldn't help.

I've also been told to get the shingles vaccine, but I'm concerned about doing it because it's a live vaccine.  I probably will sometime, though.
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Re: Flu - tamiflu
Reply #4 - 12/16/12 at 13:39:57
 
I have looked up every ingredient in the flu shot, I have opted to NOT get it.  There are 8 versions of the flu vaccine out there and EVERY one has mast cell degranulating agents in it.  I've been studying vaccines for months and can refute every reason for getting it.  Natural health minded experts all advise against getting flu vaccines based off the shoddy science provided by the vaccine industry compared with well founded health concerns.   Europe has now just taken flu shots off the market due to these same concerns.  

Since I am not a doctor, I can NOT make health recommendations, but I can share what I have learned through my own research.  Don't rely on US government based propaganda, but look into the depth of vaccine injury blogs, posts and recommendations for your self.  

Did you know the US has an entire court system only for vaccine injury, yet a law prohibits anyone from suing vaccine companies?  Vaccine injury cases are paid out through a compensation fund, funded by all US vaccine manufacturers so NO guilt is ever assigned to a particular vaccine.  Oh I could write a book with what I've learned.  

But from a mast cell perspective, I am very leery what foods I eat, what meds I take, what personal care products I use, and NOW what injectable medications I allow into my body.   I have reviewed the ingredients of every vaccine available in the US, and will not get any vaccine, until I find one without antibiotics, mercury, aluminum, formaldehyde, rat poison, dyes, sterility causing agents, toxins, carcinogens, artificial sweetners, mutagens etc.  

But don't rely on my words, do your own research and decide for yourself with an informed decision making process.  

Until you tell me that your mast cell specialist reviewed every medication ingredient in a particular vaccine and found a version without known mast cell degranulators and polysorbate 80, which is KNOWN to cause anaphylaxis in healthy individuals, then I will continue to research looking for better ways to help my immune system that doesn't have unforseen consequences.  

Oh, did I mention that I have a great uncle who was paralyzed the very day after a flu shot in 1976?  He is one of the thousands of unfortunate souls who got guillain-barre (GB) syndrome that year.  Look it up and then read the package insert of every potential vaccine you plan to take,  GB is an accepted side effect of the flu vaccine.    

I am one of those who reacts with every vaccine and now I know why.  

My best wishes to you to find health,
Lyn      
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Doozlygirl
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Re: Flu - tamiflu
Reply #5 - 12/16/12 at 13:46:39
 
Julie,
Here are the ingredient in Tamiflu:

TAMIFLU (oseltamivir phosphate) is available as capsules containing 30 mg, 45 mg, or 75 mg oseltamivir for
oral use, in the form of oseltamivir phosphate, and as a powder for oral suspension, which when constituted
with water as directed contains 6 mg/mL oseltamivir base. In addition to the active ingredient, each capsule
contains pregelatinized starch, talc, povidone K30, croscarmellose sodium, and sodium stearyl fumarate. The
30 mg capsule shell contains gelatin, titanium dioxide, yellow iron oxide, and red iron oxide. The 45 mg capsule
shell contains gelatin, titanium dioxide, and black iron oxide. The 75 mg capsule shell contains gelatin, titanium
dioxide, yellow iron oxide, black iron oxide, and red iron oxide. Each capsule is printed with blue ink, which
includes FD&C Blue No. 2 as the colorant. In addition to the active ingredient, the powder for oral suspension
contains sorbitol, monosodium citrate, xanthan gum, titanium dioxide, tutti-frutti flavoring, sodium benzoate,
and saccharin sodium.

http://www.gene.com/gene/products/information/tamiflu/pdf/pi.pdf

Best wishes,
Lyn
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Re: Flu - tamiflu
Reply #6 - 12/16/12 at 15:23:27
 
Joan,
My specialist is the one who told me not to get it. I am sure it is because of the inactive ingredients.  I react to so many things that it is better not to have it.  (I never got them before I had mast cell issues)  Thankfully a perk to the crazy mast cells for me is, I haven't been sick in 2 years!  (knock on wood) They attack everything!  My biopsy sight even "overhealed" according to the doc. Cheesy  

The ingredients in the Tamaflu are scary!!  Tons of salicylates!!
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Re: Flu - tamiflu
Reply #7 - 12/16/12 at 19:40:22
 
That makes sense, Pam.  I had no idea how much unnecessary stuff is in the shots.

I'm sure I've been told to take it because my mast cells over-react to viruses, so I get a double whammy.  Sick from the virus and then much sicker from the mast cells.  Wish I wouldn't get sick for a couple of years!
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Re: Flu - tamiflu
Reply #8 - 12/17/12 at 14:41:40
 
I was at a conference several years ago with Dr. Castells and Dr. Akin among other masto specialists. They were adamant that we mast cell disorder people should get a flu shot and a pneumonia shot because those 2 illnesses could be far more dangerous to us than the side effects.

Of course, they were talking in generalities, and everyone has their own specific situations. Ever since then, though, I have made sure to get a flu shot (and I did get the pneumonia shot, which is only done once....and perhaps repeated 10 years later.)

I will say that when I got my flu shot mid November this year, I (for the first time ever) did react to it. I did not notice it right away, but later that afternoon just felt not well and had that extreme fatigue that is mast cell related. I didn't feel great the next day either. I also had an itchy arm and red rash around the injection site  and a month later it is still a bit itchy. I have never had this reaction before, but every year that vaccine is different. So, there must have been something in it that bothered me a bit.

Would I still have gotten it if I had known I would react? Yes, because the flu is much worse, and I know how to handle my mast cell reactions.
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Re: Flu - tamiflu
Reply #9 - 12/17/12 at 16:43:41
 
Just my Two Cents;
I haven't gotten the flu shot in a few years, but Deb, you gave me some food for thought. Will have to see what my allergist thinks.
As for Tamiflu- Thanks Lyn !!! I have been wondering about that- sounds like a lot of "extras" in there that just aren't neccessary ! WHY do they do that ? Do we really need extra flavoring & color ? Tongue
lori
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Re: Flu - tamiflu
Reply #10 - 12/17/12 at 19:37:30
 
I was told that titers should be checked if I think I need another pneumonia shot.  Titers measure the level of immunity still present.  If they're still high, I won't need another shot then, but should have them checked every so often after that.

I also felt a little tired after my flu shot and a bit "off" for a few days after.  I took Tylenol, which helped, but it wasn't very bad anyway.
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Re: Flu - tamiflu
Reply #11 - 12/17/12 at 21:27:10
 
Let me throw this out there.  As a mast cell patient, we analyze every morsel of food, review ingredients on packaged foods, look up histamine and salicylate content in non-processed foods and personal care products, as well as review our every itch, flush and sensation against other's itches, flushes and sensations on the forums.  We completely turn our lifestyle upside down to eliminate our triggers.   Some of us have disected the various lists of mast cell degranulators, read every journal article, post and website mentioning the words mast cell, degranulation and anaphylaxis. And yet, many of us have openly accepted a prescription for any medication or OTC recommendation, without considering the individual ingredients or comparing those ingredients against the known mast cell degranulators.   Many of us have figured out that these very ingredients make us react/sick, even though these medications are often considered appropriate mast cell medications.

But many keep chasing the invisible--Is it a food allergy?  It is the weather?  It is my period?  Is it OAS?  Is this veggie a nightshade?  The we drasticly alter our diet, and eliminate any food that makes us react, often sacrificing our basic metabolic minimum requirements, when in fact we are chasing these symptoms with the very medication ingredients that is potentially adding to our overflowing bucket, making us degranulate and keeping us in this vicious cycle.  

While any virus, bacterial or yeast infection is known to aggrevate mast cells, if our immune systems were balanced, then our own Killer T cells could easily handle and erradicate these worrisome viruses, bacteria and yeast bugs, before they attach and become infections.  I'm not making this up, this is just Immunology 101 stuff.  

Mast cell degranulation, allergic IgE and other immune reactions occur when the Killer T cells are supressed making the B cells immunity elevated or the B cells are elevated then causing the Killer T cells to be lower (chicken and egg scenario here).  But this imbalance allows for immune dysfunction.  

And medication, including vaccines, comes with unintended consequences, as they alter basic functional biochemistry. Vaccines in general, and specifically the 8 versions of the flu vaccine, come with a higher risk to those with immune system imbalances.  Read the package insert, also known as the prescribing information for the vaccine you plan to take, preferably BEFORE the injection.  It states that this product is contraindicated in any individual with hypersensitivity to any single ingredient.  Hypersensitivity is not confined to anaphylaxis, but refers to inducing immune reaction.  And since we can't always control our mast cell reactions, I'd say that this is something to consider with informed decision making.  

Vaccine experts are appalled at the way in which vaccines are distributed and administered in this country.  1)  For example, there are 8 different flu vaccines in the US but yet NO ONE knows which version they are injected with.  2)  This information is not readily disclosed, nor is there usually access to list of written ingredients list and their function at the time of injection.  3)  And most aggreciously, this injection is unlikely documented in the personal medical record if administered through your place of employment or at a free clinic or outpatient pharmacy.  So how in the world would anyone even consider these reactins to be due to a recent vaccine?  4)   Even more scary, is that these places will typically not have a crash cart and allergy emergency kit available for immediate adverse medication reactions.  5)  And lastly, In the US, any medical procedure, intervention and medication administration with a higher than minimal risk is required to undergo Informed Consent, where a physician is required by law to discuss the risks, benefits and alternatives with the patient or guardian prior to that procedure, intervention and medicaiton administration.  This scenario can be invoked  for a specific procedure (like surgery, biopsy, or intervential procedure) or based off of a specific patient poplulation, like those with history of anaphylaxis or mast cell disorder.  Statue requires that this interaction is documented in the medical record and signed by the patient that this interaction has occured.  This falls under individual state law as well as federal statute.      

If you are contemplating getting a flu vaccine, I would highly suggest only having your injection performed in a medical office or facilty where they document this information in your medical chart and have immediate access to emergency equipment.  I suggest finding out ahead of time, which version you will get, printing out a list of ingredients, looking up the individual ingredients and have an informed discussion with your physician by discussing the actual ingredients and risk to your condition.  I would then ask about premedicating or if you should defer the shot until your reactivity has diminished.  I would specifically discuss the impact of having mercury or aluminum administered and how this impacts your immune system.  While there are strategies to limiting mercury or aluminum exposure, you can't even consider these strategies if you don't know which shot you are going to get.  

Some flu vaccines offer thimerisol free or low dose thimerisol options.  Single dose vials will not contain the preservative thimerisol, which contains about 50 percent by volume mercury, the second most toxic chemical element on the planet, next to uranium.  Some don't have mercury, but contain aluminum, which is just as toxic ot the immune and neurologic systems.  And then there are the other scary ingredients.  

I don't set out to upset the applecart, but my goal is to inform anyone willing to listen on topics that may impact other masties.  If this can help someone, then I've done what I set out to do.  

Best wishes,
Lyn
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Re: Flu - tamiflu
Reply #12 - 12/17/12 at 21:35:30
 
Deborah,
I'm not sure if yo knew this but while the flu virus in the 8 versions of the US influenza vaccine may different each year, the inactive ingredients stay the same.  The CDC recommends the specific flu virus blend (this year 3 virus strains) and the manufactuers just plug in those viruses int the same inactive ingredients formula.  I looked at lists from 2010/2011 and 2012/2013 and they are identical.  

Lori,
Well, my best answer is that these ingredients are cheap and that NO ONE is making then use wsafer ingredients in the flu vaccines.  Some of these ingredients have already been weened out of the other vaccines, due to saftey reasons (only 4 childhood vaccines have thimerisol/mercury these days).  Many of these ingredients are used to tweek/piss off  off your immune system on purpose so it can get the immune system to react to the virus.  

Take care,
Lyn      
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Re: Flu - tamiflu
Reply #13 - 12/18/12 at 01:23:36
 
Well it's good to know, Lynn, that certain ingredients stay the same in the flu vaccinations. For me, personally, that is good news as I have never reacted to it except for this year. So I will continue to get them each year.

While I understand your concern about the vaccination, I feel that you are missing the point that the flu can be fatal, especially in people who have medical conditions. This is the reason that the top experts have recommended always getting a flu shot.

It is also important to remember that we are all so different. You mentioned that we all analyze every ingredient and everything around us to identify our triggers. That is a big generality, and I don't know of any mast cell patients who analyze this. They remain aware and pay attention, but it is rare that I read someone has gotten so specific on their investigation. I actually would say that most mast cell patients don't. I definitely don't. With a diagnosis of being idiopathic, anything goes with me, so technically I could react to anything for unknown reasons and the next day be fine with them. I definitely have a long list of things that continually trigger me and I stay aware to avoid them. I don't turn my life upside down to  learn about everything I might come into contact with, though. That has nothing to do with the flu shot discussion, I just wanted to clear the air among the readers here so that they wouldn't become alarmed if your description of daily investigation doesn't match their own daily lives. Not saying one is correct over the other. Just saying that we are all different and thus will behave differently in managing our health.
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Re: Flu - tamiflu
Reply #14 - 12/18/12 at 04:14:34
 
Ms. Deb...
wanted to add just a little note to your discussion...not only are we very different ...also in our reaction to things

just my thoughts
redbird
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