I have been having all sorts of fun lately.
I have only been diagnosed with cutaneous masto, but sometimes I wonder if something else could be going on. My bone marrow biop was normal. I tried going to one of the masto doctors in my state, but when I went to my appointment, the dr refused to see me. He only sees systemic masto patients.
I do have a fabulous primary care physician who does his research though, and my hemo/oncologist is superb. I just haven't found an allergist.
Does anyone else have an absorbtion problem? If I don't take atleast 3,000 mg of Vit C per day, I get scurvy so bad that my nose bleeds all day, the skin on the top of my mouth literally rolls off, and my teeth are so temperature sensitive that it hurts to breath through my mouth. Doctors agree, it is scurvy.
Lately I have had been getting hives again. I have about 12 right now and rash almost everywhere else. I don't know what brought them on because I am eating low histamine foods. I have been eliminating foods that make my neck hurt and sinus swell. When my neck hurts and my sinus swell, I get migraines. The good news is I am having less migraines. Yeah!
So last week I must have messed up my esophagus swallowing one of those big-fat-horse-pill vit Cs because it swelled up so bad that I had to skip a couple meals. I almost went to the ER. I also felt these little nodules in my esophagus for about 5 days. I don't know if this could be heartburn related, so I decided that I need to be better about taking my meds.
Speaking of taking meds. I hate taking meds, and I don't really take them. I have zantac around, but as soon as it wears off, I have worse heartburn than I had before I took it. I also have Hydroxyzine but it dehydrates me so bad. I know I should drink more water, but that turns into more heartburn...and around and around we go... I also keep my epi pen around. I have never used it, but a few times I have gotten close when my blood pressure dropped from a reaction. I don't feel any benefits from any other recommended antihistamines, so I don't keep any of them around.
Then I also get the mystery #3 bowel problems. Sometimes I know what starts it. I feel a reaction, and then there is an exit party. No fun.
Any thoughts? Suggestions? Lectures? I'm listening. (Sorry for being gone so long)