Hi,
I'm confused about whether I have a true mast cell problem because I don't think I flush. Or if I do, I've never seen it. Also, I can eat spicey foods. My digestion is ok as long as I take my digestive enzymes, don't eat my trigger foods or overeat.
I used to have severe hot flashes and the "flushing" feeling I get now feels just like one of those just not as severe and without the profuse sweating and massive adrenaline rush. I'm so glad that's over. Whew ....
But .. I have angioedema, fm, pelvic pain, bladder pain and orthostatic intolerance /pots
that are all responding to taking allergy meds multiple times during the day.
These symptoms other than pots are mostly controllable by avoiding my known trigger foods too tho.
So far, I seem to need the ones I'm taking repeatedly. Which is why I thought I had a mc disorder. But I'm new so maybe I'm
wrong about needing these and I just need a better allergy med. Like a "normal"
person with allergies.
Could I just have "bad" allergies ? My skin prick tests from 8 + years ago showed that I was actually allergic to most things on the planet. I get shiners from dairy. Phlegm in my throat within 30 minutes of ingesting soy. I'm always getting rashes on my abdomen and scalp. Fm pain from bacon and tomatoes. Pelvic pain from nuts and chocolate. (sniff sniff) ... etc etc etc
I'm concerned that the mc testing I'm hoping to get next month will come back negative if I don't have "normal" mast cell disorder symptoms. If it does come back normal how far should I go to get a proper diagnosis ?
Sorry for the book. Maybe this info is here and I just missed it. If so, can you point me in the right direction.
.. Thanks .. Marcia