Welcome, Guest. Please Login
MCD - Mast Cell Disorders
  Visit YaBB today Wink
  HomeHelpSearchLogin  
 
Page Index Toggle Pages: 1
Send Topic Print
Flavonoids/Antioxidants (Read 9583 times)
Deb
Rookie
*
Offline


HEDS & MCAS
Posts: 18

Flavonoids/Antioxidants
10/23/12 at 07:09:38
 
I know they are in most healthy foods and are essential for life. That is the problem!!
I think that has been my problem for some time. I remember years ago I had Vivix (resveratrol) set me back for weeks. I was almost too weak to stand up. Then later I had some Noni juice and later some Thai Go Juice. Both made me the same as did the Vivix. Dark chocolate, blueberries... most fruit in general makes me feel bad. A couple of months ago I almost ended up in the hospital from Citrus Bioflavonoids (a vitamin C supplement which I need to take for the collagen issues with EDS).
Then last week I did go to the hospital after taking quercetin.
I'm thinking that it could also be a problem with the P450 gene and not making an enzyme to be able to use the flavonoid properly.
Back to top
 
WWW debdrake.com  
IP Logged
 
PamH
Mentor
****
Offline



Posts: 447
Indianapolis, IN USA
Re: Flavonoids/Antioxidants
Reply #1 - 10/23/12 at 07:58:09
 
Deb,
Have you ever looked into salicylates?  Salicylates are natural and found in plants.  Especially fruits. Salicylates are my worst  triggers, they are in so many products.  It is impossible to go completely salicylate free, but it helps to know what products are high and very high.   I was told by a doctor that salicylates don't have to enter the immune system, they cause a chemical reaction that opens the mast cell up immediatly.
Salicylates are a problem for some people that have mast cell issues.  Unfortunatly, so many fruits have to be avoided.  Pears and golden delish apples, and mangos are about the only fruits that are safe for me.  I think kiwi is safe too.
I try to tell new people on the forum about about salicylates because it took me over a year of dieting and food diaries to figure it out.  Then I had one of those DAH moments!
 I'm sure at this point some of you are getting tired of Pam and her salicylate!! Cheesy
Anyway, since you are having trouble with fruits it might pay off to do some research!
Also a low histamine diet is always a good idea!
If you have any questions, don't hesitate to ask!
Pam
Back to top
 

Pam
 
IP Logged
 
Joan
FORUM ADVISOR
*****
Offline



Posts: 1502
Colorado
Re: Flavonoids/Antioxidants
Reply #2 - 10/23/12 at 18:33:47
 
Pam,

It never hurts to repeat ideas that might help others avoid the long searches we had to do to find relief!  But I know what you mean.  Sometimes I feel like a broken record (and old enough to remember what a broken record sounded like!). Hahaha!
Back to top
 


Joan
 
IP Logged
 
PamH
Mentor
****
Offline



Posts: 447
Indianapolis, IN USA
Re: Flavonoids/Antioxidants
Reply #3 - 10/24/12 at 07:11:43
 
Joan,
Me too, I remember the broken records!  Thanks, I really want to save people to trouble that I went through, so I feel the need to tell everyone!! Smiley
Back to top
 

Pam
 
IP Logged
 
Deb
Rookie
*
Offline


HEDS & MCAS
Posts: 18

Re: Flavonoids/Antioxidants
Reply #4 - 10/24/12 at 10:02:50
 
I had heard salicylates are a trigger so I had cut them out for some time. But the other night I actually accidentally spilled salicylic acid on me. I almost panicked but nothing happened. There was no reaction. It seems I used something with salicylic acid in it a few times about a year ago on my face and my face turned quite red. But I used it other times with no reaction. I can only guess that it is a cumulative effect of when I'm on the edge of an attack when I am exposed. But this week has been so bad that I would have thought the other night would have got me. Huh
Back to top
 
WWW debdrake.com  
IP Logged
 
Deb
Rookie
*
Offline


HEDS & MCAS
Posts: 18

Re: Flavonoids/Antioxidants
Reply #5 - 10/24/12 at 10:03:52
 
I had heard salicylates are a trigger so I had cut them out for some time. But the other night I actually accidentally spilled salicylic acid on me. I almost panicked but nothing happened. There was no reaction. It seems I used something with salicylic acid in it a few times about a year ago on my face and my face turned quite red. But I used it other times with no reaction. I can only guess that it is a cumulative effect of when I'm on the edge of an attack when I am exposed. But this week has been so bad that I would have thought the other night would have got me. Huh
Back to top
 
WWW debdrake.com  
IP Logged
 
PamH
Mentor
****
Offline



Posts: 447
Indianapolis, IN USA
Re: Flavonoids/Antioxidants
Reply #6 - 10/24/12 at 11:53:53
 
Deb,
What you are talking about, we refer to as out "bucket".  Seems like thoughout the day our buckets fill up and when it is full we all have that on the edge feeling.  
I am glad to hear that you have looked into salicylates.  Hopefully they will not be an issue for you.
It usually is a trial and error situation when figuring out our triggers.  
How are you will fragrances??
Hope your week gets better!
Back to top
 

Pam
 
IP Logged
 
Deb
Rookie
*
Offline


HEDS & MCAS
Posts: 18

Re: Flavonoids/Antioxidants
Reply #7 - 10/24/12 at 14:34:12
 
Oh thank you. I didn't know the bucket theory. It's funny cuz my husband made up his own about a year ago. He said it seems like if you have a container that will automatically open under a certain weight and you use marbles for the weight, you put the marbles in and it opens when there are 24 marbles.
So the red marble wont make it open unless that marble happens to be number 24.
So now when something gets me that shouldn't have, I say it must have been marble #24.
We can just call it a bucket now that is full of marbles and it's the same theory Wink LOL
Back to top
 
WWW debdrake.com  
IP Logged
 
Deb
Rookie
*
Offline


HEDS & MCAS
Posts: 18

Re: Flavonoids/Antioxidants
Reply #8 - 10/24/12 at 14:38:35
 
I used to have very mild symptoms when around fragrances. This past year or so it has gotten worse and worse. I have meetings twice a week where people come in with perfumes on and it will make me so sick. I don't know what to do about it but it is a serious problem. Last week I ended up in a back room alone with the door closed so I could lay down on the floor. The pain kept flowing through my body in waves and I was crying and it would pass a little, then it'd hit again. It lasted about a half hour. This has happened twice in two weeks and I think there may be a new perfume - maybe a cheap type of perfume.
Back to top
 
WWW debdrake.com  
IP Logged
 
PamH
Mentor
****
Offline



Posts: 447
Indianapolis, IN USA
Re: Flavonoids/Antioxidants
Reply #9 - 10/25/12 at 04:35:53
 
The reason I asked about fragrants, because many of us have issues with them.  I can actually go into anaphilaxis over fragrances, someones purfumes or some cleaning products.  I have a horrible time just walking into the Meijer store because the fragrance they use in the restrooms overwhelm me.  I can smell it in the entry way of the store!  
If only I could make money from this wonderful skill!
Back to top
 

Pam
 
IP Logged
 
zippy890
Tutor
**
Offline


I Love YaBB 2!
Posts: 97

Re: Flavonoids/Antioxidants
Reply #10 - 05/18/13 at 10:37:08
 
This probably won't help, but  there in only one brand of green tea I have discovered that I can tolerate (and only that if I prepare it in a certain way).

Years ago, I started drinking green tea because I thought it was healthy.   It gave me a few muscle aches at first, but I eventually developed a tolerance for it.   The brand was Long Life Organic Green Tea.   Of course, the company went out of buisness.   And I spent over a year searching for a brand I could tolerate, with no luck.   Literally, on my final try, I found a brand I could tolerate (it was apparently the brand Long Life had been using before they folded).   I now use it as a "mouthwash" for healthy (albeit horribly stained) teeth and gums.

And I've found I can only tolerate it if, I don't crush the leaves before preparing, which makes the brew stronger.  

There is some research which seems to show that plant flavinoids may be only useful as a hormesis effect, i.e. they are not acting as anti-oxidants, but as irritants which the body tries to rapidly eliminate.   Similarly, I've heard that small regular doses of tylenol can actually raise glutathione levels rather than depleting them, through the same hormesis effect, and thus improve liver function and health.    Who knows if it's true.   Just interesting mind candy to play with.   I believe it is very likely true that endogenous antioxidant systems are far more powerful than anything we ever consume (SuperOxyDismutase, Uric Acid, Glutathione Peroxidase, Melatonin, etc.).   Things that promote gene expression for the endogenous anti-oxidants may be ideal (?)

Todd in Tenn.
Back to top
 
 
IP Logged
 
Page Index Toggle Pages: 1
Send Topic Print