Was going pretty darn good for several months on the Neuroprotek and then BAM a huge flare this week, I think due to stress.  I have been taking a zyrtec and two zantac in the am and pm and filling in with benedryl etc.  I am stumped and exhausted and just want it to be over!  Sorry for the rant!  Should I be adding in a middle of the day dose of zyertc and zantac?  I always get worse in the afternoon.

Tex

Thanks Ana... Yes I did 2 trials of cromolyn and had horrid GI probs. I want to try ketotifen...was having great success on neuroprotek. I woke up today w a really bad sore throat so this flare could have been my body fighting it off... I always flare before getting sick.  Gonna ask dr about ketotifen.

You could always try adding an allegra or singulair to your mix. Those are also commonly used. If you wree doing well until now, there isn't any reason to get down about it. Sounds as if you are overall doing better than most. We all have a few bad days. For the most part, I am really good. I always have mild symptoms throughout the day, but no big deal. I can easily ignore them; I just don't feel as good as my "normal" friends. Then sometimes, I will just do to much (even fun stress can get ya!), and I get sick. It's only for a day or 2, and then I am fine. I feel that I am really lucky to be this stable! So, if you are like me, then it's just a matter of perspective. Add some meds if you aren't getting better and try to find that golden lining, such as you could be worse!

Once in a blue moon, I will get really ticked off for a couple minutes that I can't ever feel full of energy and amazing. Feeling good has a different definition for me, though, now, and I am lucky to feel as I do and have the semblence (to others) that I lead a normal life. They don't know that I might feel a bit blech, but I just deal with it and enjoy what I am doing. Now, I will say that I first got ill when I was 29 and I am 45 now. I didn't have anyone figure out what was wrong with me until I was about 36, so that was a long time to be without meds shocking all the time and have docs have no clue! Once I knew what was wrong with me, I was darned MAD and SAD at the same time. I had all the feelings of it's no fair, etc. Of course, it's not fair, but I realized that is what everyone with a disease says and at least mine is not fatal! (Okay, every anaphylactic attack could be fatal, but I am aware and no how to prevent them), so overall, no worries. I actually have it better than some of those more common diseases that are fatal! So, I have had a long time to handle this stupid disease, and I just take it in stride now and pay attention to all the good points in my life. The key to handling it is first finding the right medication combo and knowing how to prevent and handle symptoms. You can do it!