So just when I think you have it figured out, my symptoms change.

Questions:

1)  Does anyone diagnosed with MCAS  or TMEP not have anaphalaxis.

2)  Does anyone with TMEP have a tryptase as low as 6.

3)  Has anyone with MCAS or TMEP gone into remission?  Meaning no symptoms  and no medicine?

I have Oral Allergy Syndrome and autoimmune chronic urticaria.  I now know what to not eat.  I was having terrible internal tremors and thought it might be from H1 and H2 meds so I stopped them.  I've been eating like I did 1 1/2 years ago.  I'm so confused how this could just disappear.

Could it have just been menapause, chronic urticaria, tree nut allergy, grass allergy, birch allergy and the corresponding oral allergy triggers making me so sick?  I was flushing, shortness of breath, fatigue and itchy.  I got the diagnosis this week of Vasovagal Syncope so this accounts for the terrible fatigue.

Was this all just a coincidence of symptoms?  Dr. Castells did agree to look over my files but still have not sent them.  

Just wondering?

I looked up oral allergy syndrome. Interesting! I've never heard of that! I ALWAYS get these sores (not bleeding open sores) on the front of my tongue. I can feel it coming on for like a day. My tongue is very sensitive, then it gets kinda numb, then these rings will appear.  Sometimes it is very painful and hard to talk, other times it is just annoying. Wonder of it could be te same thing? What are your symptoms from this? I read that it generally happens to people with hayfever. Do you also have hayfever? I used to have allergies to pollens, weeds etc as a child. But I outgrew them.

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