Thank you for responding Lyn
I know I must sound crazy manic the way I described going through my meds and trying different combinations!!lol. Though not protocol, it wasn't too manic! I tried to do it mindfully! I started Allegra 2 and 1/2 years ago when I was diagnosed. I was told to take 1 180 mg, Zantac twice a day and vistoril (hydroxyzine) as my "rescue" med. at the time of diagnosis, I was nonstop triggering to the new carpet we laud in our house, some crazy strong commercial cleaner I was mopping our tile with and all the other frangrances around me, BUT, I didn't know I was triggering. I was diagnosed high anxiety and put on a bunch of meds. It took a good year plus to make a connection between my triggers and my "panic attacks". My doctor refused to see a connection. So I did the meds as prescribed. Bit I noticed that I didn't feel too well on the 180 Allegra, so I bought the 60mg. I was taking those along with my Zantac twice a day. Still not feeling well, I went down to 1 60 mg. Allegra a day. The vistoril didn't work for me at all. It spun me out for days, couldn't sleep, it was awful! So I couldn't take that. So I bought Zyrtec and started using that as my "rescue" med for awhile. It was when I became part of this forum again that I started taking my 60 mg Allegra, 2 Zantac and added 1 Zyrtec perminately to my meds. So it's been about 4 weeks that I've been doing that. But I still don't feel very good, which could be a combination of stress, triggers, or simply not being on the right meds. When I went to Davis she told me to take Zyrtec twice a day. So I started that, but it didn't make me feel any better. In fact it gave me a headache. So 2 Friday's ago insurance finally approved my singulair, I was so excited to try this med! The first night I felt pretty good, a little weird but good. The next day I started coming down with this flu, temperature, cough, headache, mucus in my chest. It was weird because I don't know anyone who is sick and my husband and son didn't catch it. That's when I saw that these are "common" side effects of singulair! Ugh! Coincidence or not, I stopped taking that for now. So here I am. One 60 mg Allegra, I Zyrtec and 2 Zantac. I haven't tried Claritin! I didn't know that was an option! As far as calming down and breathing, I know I need to do that more for sure. Sad story on that. I knew I needed to learn how to get my body into a parasympathetic state or at least learn to ground myself when I'm feeling "squirelly", lol, so at the advice of a good friend 3 weeks ago I made an appointment with a reiki specialist. Again, I was so excited! But when I went in the room to lay on the bed, all I could smell was laundry detergent and fabric softener!!!! Ugh! I had to get up and leave
But the frustrating thing is that I know this feeling of adrenaline overload, on edge, wound up feeling forbear triggering. I just know it. So I will keep fighting. Today I made another appointment with a local immunologist/ internal medicine doc! I hear he is wonderful! Now whether he knows anything about mast cells disorders is a while other story! Hes out of the office this week, so I was unable to ask. I'm keeping my fingers and toes crossed! Thanks again for responding Lyn. It helps knowing there are people out there who will listen!!!
and I'm always here for anybody who needs someone to lean on too! anymore advice??... I'll take it!!!!!