Emilyviolet wrote on 07/28/12 at 09:30:31:thats so weird then, i would swear that i have this. i been reacting like crazy to things, even smells.. and i have severe flushing all the time. i never used to be like this when i was young either. i have all the symptoms but i do test postive to so many things . maybe i dont have this afterall. idk whats going on then
Emily, reacting to foods, medicines, contrast, and situations doesnīt rule in or rule out a mast cell disorder. According to a study performed on masto patients, these patients were NOT found to be any more IgE allergic than any other patient group out there. In other words, masto patients are highly allergic people but this is not necessarily due to their being more allergic than others. So, in other words, when a masto patient is reacting, it doesnīt mean heīs reacting because he has an allergy to something. It means that itīs the disease which is causing the reactions.
I am totally NEGATIVE to allergies and even with dust, my levels were so low that my doctor was shocked, but I have no allergies and never did. I will react to tomatoes, spinich, cheeses (Iīve had 3 very serious cases of anaphylaxis to cheese!), chocolate, shrimp and other foods. This is because they are high in histamines and some are known mast cell degranulators. I have extremely serious reactions to radiographic contrast and yet tested negative to sea foods and shrimp! Doctors donīt even dare use any kind of iodine on my skin for antiseptic purposes for this Iīll react to as well!
And tell me, how can they test us for heat or cold, when extremes of temperature are KNOWN to cause us to react. So you see, allergy testing for masto patients is really unimportant except for the purpose of helping to reduce your triggers. This is because you will trigger to the things which you have a known allergy to, so by knowing what it is that you have real reactions to, this helps you to identify known triggers and thus avoid them like the plague. But, having known allergies does NOT rule out a mast cell disorder!
I hope this helps!
Lisa