It's so discouraging when we lose a doctor who understands!  If anyone out there has a doctor who knows about mast cell disorders, please post the name and contact information.

Hi all,

I saw Dr. Maitland earlier this week and asked her about her status with taking on new MC patients.  Here's what I took from our conversation...

She is no longer going to take on new MC patients where she is the primary treating physician.  Instead, she is going to make herself available as a consultant to patients who are already working with a physician regarding potential MC issues.  (Sounds very similar to Dr. Afrin's policy on patients needing to have a physician near their home that will be the "gatekeeper" for MC related issues.  He's happy to consult/advise but doesn't want to be the primary point of contact.)  

I did not get the impression that she was leaving her practice to go into research.  (Although she may be doing research in addition to her practice.)  She has an active and vibrant allergy practice in NY, so she keeps herself very busy, even without us MC folks!

Dr. Maitland really understands our plight.  So while it is disappointing that she won't take on new MC patients, she is still available for consultation, which is better than the door being closed completely.  

Hope this helps clarify...

Best,

Julie