Oh Deb, it's ok! If you think about it what he's telling you and what you've found out is just additional ammunition to get your symptoms under control. It doesn't change who you are or what you're going through. But I know it's tough to have abnormal results.
I believe there are people on here with elevated heparin only. I'm in the "might've had elevated heparin category" but I'm not sure the test was done properly.....either way I have all of the MCAS symptoms and need to treat them.
Are you on a mast cell stabilizer? I am on a whole bunch of meds and you might need more, less or different ones to help how you feel. It take A LOT of patience and changing things one thing at a time to sort things out. You are in THE BEST of hands and you will be receiving world class treatment. It is so good that they didn't find any big nasty horrible hematologic cancer or something. But no health issue is easy
While you're waiting you can start a symptom diary if you haven't with everything you eat touch smell and all of your symptoms to see if you notice any patterns. If you still have cycles, I find tracking them as well has helped reveal some patterns for me.
We are all rooting for you and you will be ok.
I definitely get flushing and face burning/stinging often but mostly when exposed to what I've now sorted out as triggers. It took me along time to let go of feeling "100% normal" I kept wanting that to happen instantly or magically after a new pill but I've realized I'm sick with something and it's going to take some figuring. Life might not ever be the same as it was but hopefully I can control things as much as I can and get as much enjoyment out of life as possible.
When I first had anaphylaxis I had constant symptoms for almost 6 months. It was only after that that I could start to pick out triggers. Before that, everything was firing all the time!
Hang in there! Thinking of you!