I am soooo sorry PJ.  I totally understand what you are feeling right now!!!  

When I went to SC to see my specialist, Fed Ex lost ALL my labs that were done there including the methyhistamine....I had taken a taxi to a drug store ($18.00), bought a cooler (which I couldn't even bring back on the plane with me), bought ice packs that the motel so kindly keep frozen and alternated for me!!  Not to mention being stuck in the motel room all day!

And then, I didn't find out until after I got home that they had been lost. Of course.....it took an Act of God to get them all redone in Wisconsin where I live.   They don't "get"  the mast cell activation disorder stuff here......sometimes it's just plain hard to get out of bed in the morning, isn't it??

On the "flip" side of it all,  it WILL be done correctly in Boston and Dr. Castells (I have heard), is amazing.  I know it will all work out even though it seems to be an overwhelming challenge for you right now.  Hang in there!! It is worth it!

I will keep you in my thoughts and hope you are able to get to Boston soon and get the help you need.   Hugs to you, Lynda

I can SO sympathize.... I've been waiting a week and a half for my 24-hour urine test results, and I'm so worried that they lost them, left them unrefrigerated/frozen, processed them wrong, who knows what.  And goodness knows you don't want to go through the whole process AGAIN.