No Maiysa, that should not make a difference because the baseline is pretty much the same and won´t change much.  If you´re in a crisis then yes, it should go up, but there´s no reason to have a drop unless you were in anaphylaxis when it was taken but you didn´t know it.    Any fluctuations should be relatively small.


With a tryptase of 11, you´re right on the edge of having an elevated tryptase.  Granted it´s not high enough to be diagnostic for SM but without a doubt it indicates MC activation.    


One thing, Maiysa, try not to get your hopes up too high on this doctor.   if he does know about MCAS, he may not know much and he may try saying to you that you do NOT have MCAS.  Yet with that tryptase at 11ng you DO indeed have some kind of MC activation going on and he can´t say you don´t!!   So, if he says you don´t, that doctor is not for you and you´ll have to keep looking.  

I hate to say it, but it´s best to go in prepared thinking that the doctor can´t do it and then be wonderfully surprised when he can than to go in with all kinds of hope and be crushed when it turns out he tells you that you´re crazy!!!    So, be emotionally prepared, please!

Good Luck!


Lisa

I can still so vividly recall how hard I cried following two different doctor consults and they were both early on in my journey.   My husband was present for both and with both doctors they couldn´t be objective and couldn´t look past my hysterectomy, something for me which had NEVER been an issue!

When I look back on those situations now, Maiysa, I see how typical my attitude was towards doctors and my expectations to recognize what was wrong with me.   It was only after I understood more about masto and how very rare and difficult it is to diagnose that I was able to recognize that these doctors were intentionally being neglegent or abusive but that they were just way too far in over their heads and they COULDN´T recognize it!!    The one doctor I do blame more since he was a high authority in carcinoid syndrome and should know masto well enough since it´s a major differencial diagnosis to those tumors.   However, I still must recognize that the great majority of doctors just can´t do it and it´s my fault if I keep insisting with them.   It´s like insisting on that locked door which you know has no exit and nobody who can answer it.   You keep going back to it hoping that next time it will magically open!   Even if it did, it doesn´t lead anywhere, so why insist???

So, this is something that takes us all time to figure out and the sooner we begin to see what our reality is, the better off we emotionally are.  It forces us to recognize the signs when a doctor either can't take us further or doesn't want to!   Often my husband would frustratedly say, "When are you going to see that he doesn't want you?!"  It just never ocurred that a doctor wouldn't since that's their job, but we must stop thinking of our doctors as superheroes.  They make mistakes, they don't know it all, and the don't have all the answers.   Once we can get our mindsets into the correct viewpoint, then our relationships with our doctors improve immensely for they also don't feel that constant pressure to be superheroes and they begin looking at you as a teammate and not an adversary or a ball and chain - both of which are awful!

So, Good Girl Maiysa, keep pressing forward, but remember, it's a very rare and difficult disease to diagnose and you never know if you might not have one of THOSE cases which makes it even harder.   As long as you have good, positive attitudes and don't get easily discouraged and continue pressing for answers, I have every reason to believe that you will indeed find them!!


Lisa