Hi. I'm Gail. Some of you might remember from the Lefora site. I have H. POTS and a baseline Tryptase of 35.0. I was trying to post a link for a new member with Mitral Valve Prolapse (me too), but was told I could not until I posted at least once... so here it is!

Gail was your MVP diagnosed on routine echo or did you have to have a transesophageal echo

My mum had supposed mitral stenosis and a valve replacement. Usually stenosis is post rheumatic fever and has a different presentation than MVP, regurg etc but with all of my siblings with hypermobility it just makes me wonder if she was an atypical MVP.  Her MS was missed on routine echo and only caught on TEE

Yes Gail, looks like I'm stalking you!

Thanks for sharing! Way to go on the part of your doctor! The mid systolic click! I keep checking for it on me. I have a split S2 which is normal but sometimes I wonder if I just don't know better and it's a mid systolic click

DO you get any symptoms from it


Anyway my echo's been normal!


Thanks for sharing

Ana