I have so much anxiety about traveling to see yet another Dr. and finding no answers. After talking with Dr. Schwartz's assistant and hearing he doesn't do urine histamine testing I am worried that this might not be the best Dr. to see. Does anyone have any advice about this? I can't find a local Dr. who has run a cold 24 urine for this. I'm feeling really confused about what the "big" tests are, it seems it varies from Dr. to Dr. I appreciate any feedback. Has anyone seen Dr. Schwartz @ UVC? I just want to find someone to help me figure out what I can do or take that will help me feel less pain and validate what's going on with my body. Cindy

Cindy,

I don't know what tests the other specialists run, but these are some of the tests Dr. Afrin ran on me.  He ran others, too, but these were the ones focused on mast cells.  I had previously had many other tests done so he didn't repeat some of those, so my list might be missing something.

Serum Tryptase
Plasma Histamine - prechilled tube and send on ice
Plasma Prostaglandin D2 - prechilled tube and send on ice
Plasma Heprin Level - prechilled tube and send on ice
Chromogranin A
Urine for Prostaglandin D2 - 24 hr urine - send on ice
Urine for N Methyhistamine - 24 hr urine - send on ice

I hope I wrote them all down correctly and that it is helpful.

Kate