Yes, I am officially diagnosed with IA until something happens and they run more tests. He doesn't want to put me in any stress so he is waiting until I have an attack naturally before anymore tests are ran.

He ruled out vocal chord dysfunction with a breathing and singing test since I was already having issues breathing at the time. Plus he said that voacl chord dysfunction is something you usually have all of your life and it very rarely emerges late in life. He said that since I can sing a long note, and hold it, I do not have voal chord dysfunction....I'm not arguing, because I don't think it is that since the only time I have issues with talking is when I can already feel the sides of my throat touching.

I'll check out the link....he didn't really say what he thought, just that with the fact that I've had so many operations to correct connective tissue problems, he thought I could have a pulmonary disorder. Not sure if immunlogists treat that???

Donna

The redness on exposed skin could be from the sun.  My skin turns red from it.  Of course, it could also be from pollen or mold or dust in the air, too.

donnarenee,

Have you ever been tested for Ehlers–Danlos syndrome (EDS)? I have heard of many mast cell patients who also have EDS. Several of your comments caught my attention as they are symptoms of EDS.  It is so hard to figure this all out! Glad to hear you found an immunologist that you believe in.