I hear ya!!!  It sure would be so easy to do that, Kim!   And yet, after a while it would fall upon DEAF EARS and the doctors would have declared you as "anxious"  and treated you thusly!!!   Best that you didn´t know!!

I, for one, want to hear how your consultation goes with the oncologist!!!!   He has to be a hematologist/oncologist, you know.  I didn't know this when we my oncologist was able to raise the suspicion for masto.  He told me that he's a clinical oncologist but doesn't deal with blood related cancers, only tumors in other areas other than the blood.  

Let us know, will ya???


I for one am also speaking with my oncologist.  I'm not going to him to treat any cancer, but I've decided that with my history of breast cancer in the family and the combined fact that mast cells are indeed found to be involved in breast cancers, I, for one, am not going to wait until it shows, if it shows.   I've gone to a mastologist and gotten both her and my oncologist on the same page in that I want to do a BASELINE look at my breasts.  I've had some nodules that have showed up lately and although my exams look perfectly fine in that nothing looks worrying, I still think it's time I take a good look at them so that in the future, if there is any change, THEN, we have a baseline study to go upon.  I am being PRUDENT.  My oncologist didn't quite get where I was leading to at first, but when I explained to him that in order for my mastologist to be able to understand things, she needed a backup, he began to understand where I was going with this.  

So, in a couple of months I'm off to Rio again to see my wonderful oncologist!!  It's nice to know that if I ever need one, I've got a major ally!!!

Good luck Kimmie!!  Let me know!

LIsa

I'm pretty sure that the show you saw interviewed me via telephone for that story! Alas, they didn't want me, because I am too healthy looking and doing fine! Haaa! They only wanted someone who was super sick and looked it. They weren't interested in someone who had been il, but managed to get better!  

My wife watches all the time, she recorded one where masto was the
diagnosis. It was a child who had UP. Since then have watched a few & because of my bias i'll bet 1/2 of them had to do with some kind of immune system problem. The interesting point I got from them was either the parents or the patient had to take the control of the situation & search out docs who could help & most were like me lucky to run into a doc that could figure it out.
mikev