Hi Kristi! I have no medical advice to offer since I'm in the midst of tracking down a diagnosis, but I definitely understand your feelings of frustration when it comes to your family and friends. I have three kids (5, 3.5 and 1.5), and have been extremely for almost four years. It's really, really hard. But I try to focus on the fact that my kids are extremely well-loved and cared for, and my husband and I find ways to connect that don't involve travelling or lots of dinners out
. Is there some way that you could drive with your kids less? Maybe find them rides, or take the bus to school, etc.? It is one of my big issues as well, because I can start off feeling not to bad, and within less than a minute not be able to drive. I've never taken either of my two younger children out without another adult. It's actually a little funny because they don't really think I can drive since they never see me do it
My mother has had major health problems for as long as I can remember (she has fibro and I'm pretty sure she has MCAS), and so I have a pretty good idea what it's like to have chronic illness in the family growing up (without, of course, the scary anaphylaxis element). My mom adored us, and gave as much of herself as she could. When we were younger it was sometimes difficult to understand why our lives looked so different from other people we knew, but we ALWAYS knew that we were loved beyond belief. And I think both my sister and I became very compassionate towards others because we realized from early on that things aren't always what they seem like on the surface. Your kids really will be okay, and they are going to have amazing perspective as young adults and beyond. True, your family may be limited in activites and travel and such, but that really isn't what makes for a happy child. Try to focus on the things you can do, and don't be afraid to ask for help. We have full-time help while my husband is at work, and it has been the greatest blessing! I can play with my kids and snuggle them, and still have the security of knowing that if I conk out on the couch, they're safe. From your concern for your kids I can tell you're a great mom, and they are very blessed to have you!!
I wish you the best as you sort out your med situation!