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anaphylaxis (Read 27912 times)
kimtg68
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Re: anaphylaxis
Reply #60 - 10/08/11 at 15:50:43
 
Ana and Lisa, not sure if this us helpful or not. I'm no where near as educated about mast cells as Lisa is but when I saw Dr Afrin and was going over my current medications, when I shared I was taking now up to 150mg of Toprol for mt Tachycardia and had only just been diagnosed back end of January/first of February this year and was started on 50mg Toprol but we can't keep it under control long, his response was, "good luck with that" which I interprited as...we wouldn't be able to get the tachycardia under control until we get the mast cells under control. I base this on the context of our conversation. However, anytime your heart is straining this causes possible damage so wherever you can find relief is a positive. But Ana, I think with your situation that other reasons for this really need to be explored and hopefully ruled out. THEN you can look toward mast cells trying to get them under control!
Please be careful and Make safe healthy decisions for you!
Kim
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Anaphylaxing
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Re: anaphylaxis
Reply #61 - 10/08/11 at 19:16:02
 
I think the best thing is to get me somewhere where people know how to deal with this, the problem is, will I survive endure the flight given my reactive state?
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Lisa
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Volta Redonda, RJ Brazil
Re: anaphylaxis
Reply #62 - 10/09/11 at 06:30:47
 
If you premedicate with the REMA protocols, yes, you can do it!!!   I have! Cool
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Donīt forget, there is so much more to life than being sick!
 
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Anaphylaxing
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Re: anaphylaxis
Reply #63 - 10/14/11 at 15:14:13
 
They want to do BMB

I'm scared with my tachy and high steroid dose that it is risky to do it and that I might react to it


ideas?

Flying was a breeze ps!
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Joan
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Re: anaphylaxis
Reply #64 - 10/14/11 at 20:12:35
 
Again, if you do the Rema protocol before the BMB, you should be fine.  I asked for some Ativan, too, to take before.  It helped me feel calmer and less worried.
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Joan
 
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Re: anaphylaxis
Reply #65 - 10/15/11 at 12:10:44
 
the docs here are saying I dont need to up my steroid or anything
I thought I should be on some protocol
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Re: anaphylaxis
Reply #66 - 10/15/11 at 12:11:09
 
I think they might use conscious sedation, had anyone had that?
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Lisa
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Volta Redonda, RJ Brazil
Re: anaphylaxis
Reply #67 - 10/17/11 at 01:52:00
 
According to the masto experts, conscious sedation is the best way.  My doctors havenīt read this yet, though!  Before I know it Iīm history and waking up again.  Undecided
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