I apologize for the long post, but the more I read the more my past adds up.

After 20 years of lumbar pain and recent shoulder pain and loss of range of motion in my shoulder I've bucked up and gone to see some docs.  

Both diagnosed osteoarthritis (and disk degeneration in my back) and both noted my bones were "weird" and referred me to the same metabolic bone specialist who is supposed to be tops..

He rans a slew of tests (but of course tryptase was not one of them) and due to high histamine and lord knows what else, he believes I have masto and is scheduling a bone biopsy for mid October.  My bone density scans (normal 0 to osteoperosis -3) I have scored a +7.

He has told me that if my bones were losing density that there would be a treatment, but as my bones were getting more dense that there was not.  

My research is telling me that this is not so, and instinct is telling me that my specialist is looking at the disease purely from a skeletal point and not systematically.  

I was referred to Dr. Castells who agrees with my assessment, and to Dr. Dreskin here in Colorado, whom Dr. Castells knows well and will work my case with.

I thought my bone and joint pain was related to these back problems and just getting older.  Alhtough I cannot remember a time when I did not have them, I blamed them on the humid/hot and damp/cold NJ weather when I was younger.  Any the hot flushing I blamed on being pre-menopausal.

The other symptoms came sporadically and seemed unrelated so they either went without DX or I payed them little mind.

As a teen I remember getting sent by the teacher to the nurse's office as school because of getting red and blotchy.

In my twenties I had a few fainting spells that had apparently, according to Dr,  happened because of gastro issues she insisted I was having.. I was not.

I had always had slightly lower BP 100-110/60, which I am now thinking is the cause of my fainting.   In recent years my BP has increased, doc thinks that 50lb weight gain from quitting smoking is the culprit.  I've lost 30 and it has not changed so we shall see, but I no longer get light headed or dizzy upon standing and very rarely other times.  Moving to Colorado as a smoker, the altitude proved to bring my asthma to light, but quitting the cigs has seemed to right that most of the way.  But had a terribly scary  spell after exercise a few months back and I no longer had my inhalers..

was DX with diverticulosis after a terrible gastro spell a few years ago, and Mitral Valve prolapse which is supposedly the cause of my sometimes chest pain.

In the past 2 years I have developed a sweating/hot faced reaction to ketchup and salsa.  and will now be paying attention to other triggers (this morning I noticed I became very itchy after eating strawberries - and my face was very hot.  And i seem to get a slight nausea at least once or twice a week these days.

I've also had palpitation spells over the years, about once a year.  And just feel exhausted all the time, but even worse in the afternoons when the brain fog settles in.  8-9 hours of sleep still leaves me tired in the am, when I can get it and not sit up half the night.

For now I will continue to try to find my triggers, but my reactions seems very mild, so I will really need to pay attention.

I am not on any meds as I have no diagnosis yet, except for anti-inflammatory for the back and accutane for my cystic acne.  Haven't tried any anti-histamines and not sure if I should until I complete testing.

Anyway.. thanks for listing, and thanks for all of the great information, courage and support you all give..

Cindy

Thanks Kim,

Sometimes is really does help just to vent.  Especially to those who understand...  

Hi Cindy,
Im sorry its been so confusing for you, we certainly understand that. You have seen the DR that most of us would sell our first child to see lol..  You are so lucky to have seen her! Have faith in DR Castells opinion. She might not have a warm bedside manner but I would rather have her intelligence
You need to be on some meds and quickly. Lucky for you most of the ones you will need are over-the-counter and you can start quickly. You will need a combo of H1 and H2 blockers, proton pump inhibitors, mast cell stabilizers, leukotriene inhibitors too.

You need to start a daily diary of what you eat, how you feel, what type of activity you do and how it makes you feel, what exposures to triggers you have, etc.  

Many of the symptoms you mention are very common to us and the meds you should start will help with those symptoms. You should never stop your meds when testing for any reason. You need to do a lot of reading and studying so start soon!! The good news is, you arent alone anymore, but youre with us .
Great to have you here:)
hugs
Ramona