Well my father in law had colon cancer but is still alive. He just recently learned that his tryptase is 55, IgE 150, ANA 1.4, hashimotos.

He had colon cancer 8 years ago, did chemo, radiation and had the tumor removed. After the surgery one of his stitches got infected and he got peritonitis and they had to operate on his stomach. They were unable to stitch his stomach back up and every time they tried the skin would tear open. After4 months of this they put him in a medically induced coma for 2.5 months and when they brought him out of it they were able to close his stomach.

He suffered from seasonal allergies all his life and got allergy shots for years. After his colon cancer and got out of the Hosp he no longer suffers from allergies.

They were never able to figure out why his stomach wouldn't heal but I have a suspicion it was some kind of mast cell related issue. He lives a very calm life and is a model Swiss citizen... has managed to get to 78 with relatively good health. I also wonder if being put in a coma for 2.5 months made his immune system completely rest and reset itself?

His mother had 8 siblings who all died of stomach cancer, strokes, asthma. Many of their children also got colon/stomach cancer but at much younger ages and have all passed.

My husband had been regular about getting colonoscopies and has had 5 polyps removed.
Hope this is helpful in some way, let me know if you need any more information.
Patricia

Patricia, what a story! Thank you so much for telling it. When wounds fail to heal, it is helpful in many cases to apply a 1% cromolyn cream. That settles the mast cells and keeps them from continuing an inflammatory response, allowing them to get on with their job of tissue remodeling. Pity someone didn't know that for your F-I-L.

missmarple, thank you for that. My mother died of pancreatic cancer also.  For your ovarian cancer, did you have radiation and chemo? ?plus surgery I am assuming.

Much appreciated!

Thanks nancy for the cromolyn cream I'll keep that in mind because anytime my husband gets a cut or wound it takes him 3 times as long to heal.
Its a miracle that my father in law is alive and that he's been walking around with a mast cell disorder and hashimotos and had no idea. But they are like the The Cleavers from Switzerland; we unfortunately loved living a life full of stress, 24/7/365 going 150miles an hour (don't know where we were going so fast) and pushing ourselves just because we could. Not a good idea when you have a mast cell issues lurking in the shadows...

Haha yes we did not know how to stop or want to! It was always go go go...not anymore... we have learned the true meaning of patience, balance and tying to pace ourselves.

I like to do things at a lightening pace and sometimes my husband says my nervous energy is making him react!!! Poor man! Were both a work in progress and if anything this has really taught us to slow down and smell the roses (as long as they dont make him react) and enjoy the little things life has to offer!

No cancer for myself.  My dad had thyroid cancer and once he got it removed and on thyroid, he said his allergies and sinus problems improved alot.  His brother had serious immune system problems for awhile and was on a low dose of chemo (I have been told second hand so not sure what the med was) to suppress back his immune system.  Later they found nodules on his thyroid, removed it, and all the weird immune system problems went away...so who knows!  Could just be coincidences.

Not so far, but I always make sure to get it checked yearly give my kind of bad family history in that department.  I do believe that autoimmune illnesses seem to come hand in hand...at least for me they do. I need to get my thyroid checked again, but haven't this year.

Hi...I am a newbie and have not yet been diagnosed with a mass cell disorder.  I have been reading articles from one of the global monitors on this site and my symptoms sure seem to fit!!  I started with severe food intolerances 18 months ago.  ALL of the specialists I see have done tons of tests and everything comes back normal.  I have tachycardia, elevated BP, dizziness, bone pain, itchiness and weakness almost every time I eat.  

I am a 7 year breast cancer survivor. (My cancer was graded 3/3 on a scale of 1 to 3 where 3 is the most invasive). I had a mastectomy and 8 rounds of dose dense chemo.  I have spent the last year and a half thinking it was the chemo that has caused my horrible reactions but I think there is something in my body that is very "off".  I also had pre-cervical cancer when I was 20.  

I was recently diagnosed with dysautonomia (Dec. 2010) and have Hashimoto's thyroiditis (diagnosed at age 25).

Hope this helps!  Lynda