Hi Lynda!
Wow, it sounds like youve spent most of your adult life trying to survive one thing or the other, I hope you dont end up having mast cell disease (youve already went through enough!) But we are all here for you, if you do.
OK first you need to test for the disorders that mimic mast cell disease to make sure you dont have those problems. Once youve done that you can concentrate on taking control of your illness and tweaking your meds until they are perfect for you.
Jen is right. That list of meds isnt what mast cell meds should look like. You dont need to be on. The only way to control reactions from mast cell disporders is to use H1 and H2 blocking antihistamines, leukotriene inhibitors, mast cell stabilizers and possibly proton pump inhibitors.
Im going to use your own list to comment on what youre taking now;
Aspirin--not good.. most of us are very sensitive to any salicylates and get hives over it--you might want to delete this from your meds--and include meds that have it in them.
Wellbutrin SR-some can take this , more cant.. Many of us seem to have problems with Seritonin and we shouldnt take this type of med.
Advair Diskus
Nexium
Synthroid
Coreg--very bad for us, this is a beta blocker drug and we should not be on beta blockers ever. Beta blockers make mast cell degrade and give us more reactions--also if you go into shock and youre on a beta blocker, you stand a very good chance of the epi pen not working--the beta blocker interferes with it. You cannot stop this suddenly, you must wean off slowly--talk to your DR about it.
Pevastatin
Keppra XR
Aolprazalam as needed --one of my favorites to be chilled out when waiting for a reaction to stop and to not let stress make the reaction worse
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To Lisa H, lets go over your meds;
I am wondering if you think maybe I am undermedicated since my throat is still swollen & its hard to swallowYes!! Anytime you have trouble with your throat or a reaction, grab the antihistamine that works best for you and take an extra dose!
Lisa H's list
..Allegra 180mg 2 xday, GREAT med, I love this one
Vistaril 25mg 1 xday, Try twice a day, it has a great effect on that brain fog--talk to your DR. about it.
Prevacid 20mg 2 xday, My favorite is Zantac 300 mg twice a day. it works much better than pepcid but this is ok if you cant take Zantac.
imuran 50mg 1 xday, I dont know much about this one but it looks interesting.
Gabapentin 300 mg 1xday, good for nerve pain
amitripyline 10mg 1xday,
ativan 1mg @ bedtime. Good one to chill out with.
60 mg of prednizone for a week now.
Prednisone is a great med to stop reactions that are continuing in cycles and give you a reset to start again. You can take 5 days of it without having to wean off of it, slowly. After being on it for 5 days, you must wean off to prevent adrenal crisis.. at a rate of going down in dose 5 to 10 mg every 3 days until you are down to 10 mg--the amount your body normally makes per day, then you can stop the prednisone.. Remember that this med has some huge side effects--like a crazy appetite... getting emotional very easily, gaining water weight (peeing alot too), moon face while on long time periods of it...
OK hope this helps with some of your questions!!
Hugs to you both
Ramona