Susan
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Posts: 211
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Hi jbean,
My GI doc thinks I have this, too. I had an endoscopy last Thursday, and am waiting for the biopsy results, but they did find the kind of ring like structures they expect to see with EoE.
What I have read is they use swallowed cortisone. They use the inhaler used for asthma, but you don't use the spacer, so more goes into the throat and mouth.
I've read quite a bit about it. Some think it is caused by delayed allergies to unknown substances, others don't. I'm especially interested, as I think it may be active throughout my entire GI tract.
Nancy, thank you for explaining the study. I do want to say, based on other things I have read, that they are stating that IgE allergy is probably not involved, but that doe snot mean that other allergy reactions are not.
As I said above, some researchers believe that it may be delayed allergy response, which is not IgE mediated. Some patients have been able to find their triggers, and manage the illness that way.
Unfortunately, it is only managed, not cured. The use of cortisone only helps for as long as it is used, once stopped, symptoms return.
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